Surgical Science, 2022, 13, 449-459
https://www.scirp.org/journal/ss
ISSN Online: 2157-9415
ISSN Print: 2157-9407
DOI: 10.4236/ss.2022.1310054 Oct. 20, 2022 449 Surgical Science
Expectations of Caregivers of Patients with Cleft
Lip and Palate Attending the Cleft Clinic of
KATH for the First Time
Emile Kouakou Tano
1*
, Priscilla Felicia Tano
1
, Paa Ekow Hoyte-Williams
2
,
Alexander Oti Acheampong
2
, Peter Donkor
2
, Solomon Obiri Yeboah
2
1
Department of Surgery, Komfo Anokye Teaching Hospital, Kumasi, Ghana
2
School of Medicine and Dentistry, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana
Abstract
Background: Cleft lip and palate (CLP) is one of the most prevalent conge-
nital malformations affecting the face worldwide, with high prevalence in
Asians, Americans, and Caucasians and low in Africans. Orofacial Clefts
(OFCs) are among the causes of perinatal death in Ghana. The children often
experience difficulties in swallowing, feeding, and speaking. These children
often face problems in cognition, education, and communication. Caregivers’
ignorance of treatment, poverty, and noncompliance with follow-up sche-
dules are obstacles to optimal cleft care. Most studies focus on the incidence
of cleft, but not much is known about caregivers’ expectations. Methodology:
An exploratory qualitative study design was used for this research between
October and November 2020. The study site was the Komfo Anokye Teach-
ing Hospital, (KATH), Kumasi, Ghana. The respondents were recruited from
the oral health clinic. Included in the study were all CLP caregivers attending
the cleft clinic for the first time. Purposive sampling was used to select fifteen
caregivers who met the inclusion criteria. Face-to-face interviews with a
semi-structured interview guide were used to collect data. The data were ana-
lyzed using NVivo software. Three major themes and six sub-themes emerged
from the data analysis using thematic analysis. Ethical clearance was obtained
for data collection. Results: Most caregivers were expecting their babies to be
operated on, and they were certain that the cleft would be repaired at the end
of the treatment, but they were unfamiliar with the process and cost of treat-
ment. Less than half of the caregivers reported that they were oblivious to
what to expect the first time visiting but had hopes that the healthcare profes-
sionals would be able to close the cleft for their babies. Conclusion: The ma-
jority of the caregivers expressed fear and disappointment at the diagnosis of
their child. Some caregivers were very scared to the level where they had to
How to cite this paper: Tano, E.K., Tano,
P.F., Hoyte-Williams, P.E., Acheampong,
A.O., Donkor, P. and Yeboah, S.O. (2022)
Expectations of Caregivers of Patients with
Cleft Lip and Palate Attending the Cleft
Clinic of KATH for the First Time. Surgical
Science, 13, 449-459.
https://doi.org/10.4236/ss.2022.1310054
Received: September 7, 2022
Accepted: October 17, 2022
Published: October 20, 2022
Copyright © 2022 by author(s) and
Scientific Research Publishing Inc.
This work is licensed under the Creative
Commons Attribution International
License (CC BY 4.0).
http://creativecommons.org/licenses/by/4.0/
Open Access