https://doi.org/10.1177/1556264619854629
Journal of Empirical Research on
Human Research Ethics
1–16
© The Author(s) 2019
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DOI: 10.1177/1556264619854629
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Paper for a Special Issue on Ethical Issues in Social Media Research
Introduction
Social media (SM) presents a multitude of opportunities to
engage research participants. Researchers can initiate con-
tact and invite potential participants through social net-
working sites (recruitment; Thornton et al., 2016). In
longitudinal research, researchers can maintain contact with
participants by posting updates on dedicated study Facebook
sites (retention; McGinley, Zhang, Hanks, & O’Neill, 2015)
and search for participants who have been lost to follow up
using SM search features (tracing; Schneider, Burke-
Garcia, & Thomas, 2015). While there is a growing body of
literature on the utility of using SM to engage research par-
ticipants, empirical literature examining the ethical implica-
tions of recruiting, retaining, or tracing participants via SM
is limited. Little is known about researchers’ and human
research ethics committee (HREC) members’ views, atti-
tudes, and ethical concerns toward using SM in this context.
It is also unclear what resources researchers and HREC
members use when considering the ethical appropriateness
of such research. This article presents findings from an
online survey of Australian researchers and HREC mem-
bers regarding their experiences, attitudes, and ethical con-
cerns toward recruiting, retaining, and tracing participants
using SM. We note that research on SM itself or the use of
SM as a data source (e.g., content analysis, “big data” ana-
lytics) is gaining popularity, yet is beyond the scope of this
article.
SM are web-based communication channels that allow a
community of users to interact and create and share content
(Kaplan & Haenlein, 2010). Examples include social net-
working sites (e.g., Facebook, LinkedIn), microblogs (e.g.,
Twitter), and discussion forums. Worldwide, SM use con-
tinues to grow (Kemp, 2017). Australians are particularly
strong SM users: 70% use SM, with half of adults accessing
Facebook daily (Cowling, 2018; Despinola, 2018).
As the popularity of SM as a communication tool has
grown, so too has the application of SM as a research tool.
854629JRE XX X 10.1177/1556264619854629Journal of Empirical Research on Human Research EthicsHokke et al.
research-article 2019
1
La Trobe University, Melbourne, Australia
2
Murdoch Children’s Research Institute, Melbourne, Australia
3
Parenting Research Centre, Melbourne, Australia
4
Queensland University of Technology, Brisbane, Australia
5
The University of Queensland, Brisbane, Australia
Corresponding Author:
Stacey Hokke, Judith Lumley Centre, La Trobe University, Bundoora,
VIC 3086, Australia.
Email: s.hokke@latrobe.edu.au
Ethical Considerations in Using Social
Media to Engage Research Participants:
Perspectives of Australian Researchers
and Ethics Committee Members
Stacey Hokke
1
, Naomi J. Hackworth
1,2,3
, Shannon K. Bennetts
1,2
,
Jan M. Nicholson
1,2,4
, Patrick Keyzer
1
, Jayne Lucke
1,5
, Lawrie Zion
1
,
and Sharinne B. Crawford
1
Abstract
Researchers increasingly use social media (SM) to recruit, retain, and trace participants, yet empirical literature investigating
the ethics of engaging participants via SM is lacking. We conducted a survey of 401 Australian researchers and human
research ethics committee (HREC) members to examine their experience, attitudes, and ethical concerns toward engaging
participants via SM. Data revealed that researchers and HREC members share similar concerns and attitudes about using
SM in general and in research. We identified a strong demand for additional support, training, and guidance on SM research
ethics. This need reflects researchers’ and HREC members’ limited confidence and knowledge of ethical issues in this
context and a lack of awareness of available SM-specific ethical guidelines.
Keywords
Internet research, social media, research ethics, participant recruitment, participant retention, participant tracing,
institutional review board, human research ethics committee, survey research