Research Article Open Access
Volume 4 • Issue 3 • 1000166 J Ment Disord Treat, an open access journal
ISSN: 2471-271X
Open Access Research Article
Journal of Mental Disorders
and Treatment
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ISSN: 2471-271X
Agyekum, J Ment Disord Treat 2018, 4:3
DOI: 10.4172/2471-271X.1000166
*Corresponding author: Agyekum HA, Department Geography and Resource
Development Psychology, University of Ghana, Ghana, Tel: 233505517635;
E-mail: haagyekum1@gmail.com
Received August 02, 2018; Accepted August 08, 2018; Published August 16,
2018
Citation: Agyekum HA (2018) Challenges and Coping Strategies for Parents with
Autistic Children. J Ment Disord Treat 4: 166. doi:10.4172/2471-271X.1000166
Copyright: © 2018 Agyekum HA. This is an open-access article distributed under
the terms of the Creative Commons Attribution License, which permits unrestricted
use, distribution, and reproduction in any medium, provided the original author and
source are credited.
Challenges and Coping Strategies for Parents with Autistic Children
Agyekum HA*
Department Geography and Resource Development Psychology, University of Ghana, Ghana
Abstract
Studies so far look at the causes and cure for autism, however, little work has been done on the challenges
parents of these children face in their upbringing. This study brought out the challenges that parents with autistic
children face as well as the coping mechanisms these parents adopt in their quest to cater for their children. Semi
structured interviews were used as a form of data collection. Prominent themes the study highlights is the challenges
of parents, which was associated with the inability of the parents to have meaningful conversations with their
children, the fnancial burden of taking care of them, stigmatization of their autistic children as well as themselves,
and the demandingness of the autistic children. With these problems, parents in the study adapted to their situation
by accepting the situation of their wards, depending on God for strength, receiving support and encouragement from
some family members and friends, joining support groups, as well as taking leave from work to help their children
seek proper medical care.
Knowing the challenges parents with children with autism
face would constitute grounds for support to be given to them by
professionals. If the challenges the parents are going through are clearly
spelt out, therapists who deal with the families of children with this
disorder will know the type of treatments to provide, even if it has not
been asked for. Aside helping therapeutic professionals, the fndings
will also inform the teachers at special schools as to how to draw their
curriculum to meet the needs of the autistic children. Tis goes to show
that the fndings of this work will make meaningful contributions to
policy making, research and practice. Te aim of this study is therefore
to fnd out the challenges and coping strategies adopted by parents with
autistic children.
Methods
Te current study is designed to have a qualitative background,
using the phenomenological approach. Tis research design was
selected to assist the researcher get a better understanding of the
experiences faced by parents of children with ASD and also help in
gaining the opportunity to observe the nonverbal cues, aside the
spoken word from the interviews that were conducted.
Te study was conducted in the Greater Accra region of Ghana.
Majority of the research work was done at PACID, an institution for
parents who have children with disabilities and certain parts of Accra.
A total number of ten parents were interviewed for the purpose
of this research. To ensure gender representation, the researcher
interviewed two male parents and seven female parents. One of the
participants was a sister who was taking care of her brother who had
autism. Tere were variations in occupation, which included both the
formal and informal sectors of the Ghanaian economy. Most of the
Keywords: Autistic children; Coping strategies
Introduction
Autism Spectrum Disorder is a very common developmental
disability which occurs in 1 out of 110 children over the world [1].
Te term has been defned by Bolte [2] as “a neurodevelopmental
disorder persisting defcits in social interaction across multiple
contexts, alongside restricted, repetitive patterns, interests, or activities
as manifested by at least two prototypically infexible behaviors.” Due
to its similarity with other disorders like Asperger Syndrome, Atypical
Autism and Disintegrative Disorder, the term was changed from
Autism to Autism Spectrum Disorder [3]. Tere is no exact cause for
autism [1,3] however, there are speculations of it being caused either
genetically or by environmental factors [3]. In a similar vein, there is no
known cure for the disability [1,4], there is therefore the need for early
therapeutic treatment [1].
Parents with autistic children daily go through challenges. Tese
challenges may be the inability of the children to fend for themselves,
the child’s educational challenges and the stigma and stereotypes that
comes with having a child with Autism Spectrum Disorder. At the
age of two, most children should be toilet trained; however, this is not
the case with children living with autism. At that age they would still
have to be assisted in almost every facet of their lives. It makes it very
stressful for their caretakers especially their mothers [5]. Although the
symptoms of autism tend to last for a long period of time, it is stated
that, it is more difcult for the parents to take care of the child when he
is younger [6] or when the child is a toddler [7].
Stigma and stereotyping is a very common issue for parents with
children with autism. Te mere fact that parents have a child with
that condition is a very hard thing to accept and the situation is made
worse when the society instead of giving a helping hand stigmatize
you. McCabe [8] is of the view that stigma is a major challenge of
parents with children with autism. Tis stigma is heightened by the
embarrassing comments that people make when they frst realize a
parent has a child with that condition [9].
Even though, all these challenges are faced by parents with autistic
children, much work has not been done in Ghana to ascertain the
particular problems that these parents are facing. With this, there is the
need for a research work that will look at the challenges that parents
with autistic children in Greater Accra, the capital city of Ghana go
through in their daily lives.