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Children and Youth Services Review
journal homepage: www.elsevier.com/locate/childyouth
Community-engaged process to adapt evidence-based programs for parents
of children with autism spectrum disorder
Marissa E. Yingling
a,
⁎
, Robert M. Hock
b
, Mark E. Feinberg
c
, Amy A. Holbert
d
a
2217 S 3rd St, Julius John Oppenheimer Hall, Kent School of Social Work, University of Louisville, Louisville, KY 40208, United States
b
Hamilton College, 1512 Pendleton St., College of Social Work, University of South Carolina, Columbia, SC 29208, United States
c
Edna Bennett Pierce Prevention Research Center, College of Health and Human Development, Pennsylvania State University, 314 Biobehavioral Health Building,
University Park, PA 16802, United States
d
1800 Saint Julian Pl Ste 104, Family Connection of South Carolina, Columbia, SC 29204, United States
ARTICLE INFO
Keywords:
Autism spectrum disorder
Coparenting
Evidence-based program
Program adaptation
Service navigation
ABSTRACT
The purpose of this paper is to describe a community-engaged evidence-based program (EBP) adaptation process
informed by existing frameworks that incorporates program theory and recommendations from professionals
and members of the target population, or parents of children with autism spectrum disorder (ASD). To inform
adaptation, we conducted qualitative interviews, recorded detailed process notes, convened an implementation
team, and completed a pilot study of the adapted program. We present a five-phase, systematic adaptation
process that resulted in Autism Parent Navigators, a 6-week in-home coparenting program delivered by peer
support parents to parents of young children recently diagnosed with ASD. The adaptation process highlighted
could be used to adapt other EBPs for ASD. Future research on adaptation processes used in community contexts
is imperative to maximize the potential for EBPs to improve well-being for children with ASD and their parents.
1. Introduction
A large number of children meet diagnostic criteria for autism
spectrum disorder (ASD) (Centers for Disease Control and Prevention,
2016, 2018), a neurodevelopmental disorder characterized by social
communication challenges and restricted or repetitive behaviors or
interests (American Psychiatric Association, 2013). One promising ap-
proach for addressing the needs of the growing number of parents
raising children with ASD is the adaptation of existing evidence-based
programs (EBPs). Despite calls for research that details the adaptation
process of EBPs, however, such work is scarce. Therefore, in this paper
we describe an evidence-based adaptation process undertaken in one
southeastern state in the United States, in which researchers and a
statewide community organization partnered to adapt an EBP for par-
ents of children recently diagnosed with ASD. Specifically, we review
literature on the adaptation of EBPs, justify the need to adapt Family
Foundations for parents of children with ASD, describe the adaptation
process in detail, and offer recommendations for successful adaptation
of parenting programs.
1.1. Adaptations of evidence-based programs
Once thought to be a rare event, when EBPs are adopted and im-
plemented in a new context and with populations other than those in-
cluded in an original randomized controlled trial, adaptations are in-
evitable (Backer, 2002; Rogers, 1995). They are “deliberate or
accidental” (Backer, 2002, p. 4) and include deletions or additions,
modification of original components, alteration of the intensity of
components, or changes necessary in the particular culture of the local
context. In recent years, the study of adaptations to EBPs has increased.
Researchers acknowledge the need for a systematic approach to the
guided adaptation of EBPs that preserves their core components or
“spirit” (Stirman, Miller, Toder, & Calloway, 2013, p. 2).
A handful of researchers have proposed frameworks for adapting
EBPs. Among the first, Backer (2002) presented a six-step framework
for balancing fidelity and adaptation. Steps included determining pro-
gram theory, using a core components analysis, considering concerns
for implementation at the intended site, working with the program
developer, working with the host organization or community, and
generating an implementation plan (2002, pp. 16–17). Sponsored by
the Centers for Disease Control and Prevention, McKleroy et al. (2006)
offered a preliminary guide for researchers to adapt programs to new
https://doi.org/10.1016/j.childyouth.2020.104876
Received 14 November 2019; Received in revised form 17 February 2020; Accepted 17 February 2020
⁎
Corresponding author.
E-mail address: marissa.yingling@louisville.edu (M.E. Yingling).
Children and Youth Services Review 112 (2020) 104876
Available online 18 February 2020
0190-7409/ © 2020 Elsevier Ltd. All rights reserved.
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