J Appl Res Intellect Disabil. 2018;1–12. wileyonlinelibrary.com/journal/jar
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1
Published for the British Institute of Learning Disabilities
© 2018 John Wiley & Sons Ltd
Received: 3 August 2017
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Revised: 24 May 2018
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Accepted: 25 May 2018
DOI: 10.1111/jar.12498
ORIGINAL ARTICLE
Health indicators in intellectual developmental disorders: The
key findings of the POMONA-ESP project
Annabel Folch
1,2
| Luis Salvador-Carulla
3
| Paloma Vicens
2,4,5
|
Maria José Cortés
1,6
| Marcia Irazábal
7,8
| Silvia Muñoz
9
| Lluís Rovira
1
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Carmen Orejuela
1
| Juan A. González
10
| Rafael Martínez-Leal
1,2,6
1
Intellectual Disability and Developmental
Disorders Research Unit (UNIVIDD) -
Fundació Villablanca, IISPV, Universitat
Rovira i Virgili, Reus, Spain
2
Department of Psychology, Universitat
Rovira i Virgili, Tarragona, Spain
3
Centre for Mental Health
Research, Research School of Population
Health, ANU College of Health and
Medicine, Australian National University,
Canberra, ACT, Australia
4
Research Center in Behavioral Assessment
(CRAMC), Universitat Rovira i Virgili,
Tarragona, Spain
5
Laboratory of Toxicology and
Environmental Health, Universitat Rovira i
Virgili, Tarragona, Spain
6
Centre of Biomedical Research Network on
Mental Health (CIBERSAM), Madrid, Spain
7
Parc Sanitari Sant Joan de Déu, Sant Boi de
Llobregat, Spain
8
Faculty of Education, Universitat de
Barcelona, Barcelona, Spain
9
Plena Inclusión España, Madrid, Spain
10
Asociación en Favor de las Personas
con Discapacidad Intelectual de Córdoba-
APROSUB, Córdoba, Spain
Correspondence
Annabel Folch, 1Intellectual Disability and
Developmental Disorders Research Unit
(UNIVIDD) - Fundació Villablanca, IISPV,
Universitat Rovira i Virgili, Reus, Spain.
Email: anabelfolch@gmail.com
Funding information
Fondo de Investigación Sanitaria (FIS),
Grant/Award Number: PI12/01237; Instituto
de Salud Carlos III (ISCIII)—Ministry of
Economy and Competitiveness; Fundació
Port Aventura
Abstract
Background: The aim of this paper was to summarize the main results of the
POMONA-ESP project, the first study to explore health status in a large representa-
tive, randomized and stratified sample of people with intellectual developmental dis-
orders in Spain.
Methods: The POMONA-ESP project collected information about the health of 953
individuals with intellectual developmental disorders.
Results: Diseases such as urinary incontinence, oral problems, epilepsy, constipation
or obesity were highly prevalent among the participants; with gender-differentiated
prevalences for certain conditions, and age and intellectual disability level as risk fac-
tors for disease. Overmedication was common in the sample, and drugs were often
prescribed without any clinical indication or follow-up. The present authors also
found a lack of important relevant information about the participant’s health and a
lack of adequate genetic counselling.
Conclusions: Our findings may contribute to a better understanding of health status
and needs of people with intellectual developmental disorders and suggest several
courses of action to improve their health care.
KEYWORDS
developmental disabilities, health conditions, health profiles, intellectual developmental
disorders, intellectual disability