From the International Bureau for Epilepsy
IBE Commission on e-Solutions, Game Plan
1. Background
Conscious of the enormous strides that have been made in the world
of electronic communication and its growing use as a means of pro-
viding support, care, and education to people with epilepsy and those
who care for them, the International Bureau for Epilepsy (IBE) has
established the Commission on e-Solutions.
The importance of the use of electronic communication platforms is
recognized by the World Health Organization (WHO), which has stated
that, regarding its health-for-all strategy [1], it recommends that WHO
and its member states should integrate the appropriate use of health
telematics in the overall policy and strategy for the attainment of health
for all in the 21st century [2].
Epilepsy is also one of the priorities in the Mental Health Gap Action
Programme (mhGAP) of WHO [3].
The advent of social media platforms has opened avenues for
patient and provider education as well as support groups. Voice
communications including analogue and Voice over Internet
Protocol (VOIP), Facebook, Twitter, Webex, and Zoom are some
examples.
While telemedicine has been used for some time as a means of
supporting long distance clinical healthcare, through the exchange of in-
formation between physicians and between physicians and their
patients, the focus of the IBE e-Solutions Commissions will be on the
opportunities that electronic communication offers regarding the social
aspects of epilepsy.
Electronic communication in epilepsy should be a powerful tool in
the care and education of people living with epilepsy, their care givers,
and the population as whole. Unfortunately, it is underutilized. Yet, for
developing countries and remote areas in all regions, electronic com-
munication offers an opportunity for caregivers, patients, and their
families to improve and disseminate knowledge and awareness about
epilepsy.
For example, in Namibia, people with epilepsy who have con-
tact with organizations, medical facilities, or other people with
epilepsy feel less isolated and are better able to defend themselves
against discrimination with gained knowledge. That is also the
situation in sub-Saharan, Latin-American, and South East Asian
countries.
People with epilepsy even in developed countries, due to restricted
driving privileges, are often unable to attend appointments or partici-
pate in support groups.
2. Objectives of the commission
The following are the objectives of the commission:
• To document IBE activity that uses electronic communication
opportunities;
• To identify the gaps that the commission can address;
• To create an Action Plan to further encourage the utilization of elec-
tronic communications in epilepsy.
Epilepsy & Behavior 84 (2018) 179–181
Najib Kissani
https://doi.org/10.1016/j.yebeh.2018.05.003
1525-5050/Crown Copyright © 2018 Published by Elsevier Inc. All rights reserved.
Contents lists available at ScienceDirect
Epilepsy & Behavior
journal homepage: www.elsevier.com/locate/yebeh