Eur J Cancer Care. 2019;e13029. wileyonlinelibrary.com/journal/ecc
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https://doi.org/10.1111/ecc.13029
© 2019 John Wiley & Sons Ltd
1 | INTRODUCTION
Children and adolescents with cancer often experience multiple
symptoms such as pain, sleep disturbances, fatigue, nausea, change
in appetite and depression that negatively affect their Health‐
Related Quality of Life (HRQOL; Miller, Jacob, & Hockenberry, 2011;
Nunes, Jacob, Adlard, Secola, & Nascimento, 2015; Rosenberg et al.,
2016).
Pain is a major problem for children with cancer, and its pres‐
ence and level varies during treatment (Calissendorff‐Selder &
Ljungman, 2006; Dupuis et al., 2016; Sung et al., 2011), and even
after treatment (Tutelman et al., 2018). Furthermore, children with
cancer have experienced more pain from treatments and painful
procedures than from the disease itself (Twycross, Parker, Williams,
& Gibson, 2015). Pain is a multidimensional symptom that often in‐
cludes physical, psychological and emotional experiences (Enskär
& Essen, 2007; Jacob, McCarthy, Sambuco, & Hockenberry, 2008).
Unrelieved pain has negative psychological and physiological conse‐
quences, such as lower well‐being and HRQOL and impaired sleep
(Calissendorff‐Selder & Ljungman, 2006; Ruccione, Lu, & Meeske,
2013). Sleep disturbances may be part of a cluster of symptoms that
includes pain (Berger et al., 2005); both symptoms may represent
Received: 30 June 2017
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Revised: 10 January 2019
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Accepted: 17 January 2019
DOI: 10.1111/ecc.13029
ORIGINAL ARTICLE
Pain, sleep patterns and health‐related quality of life in
paediatric patients with cancer
Michelle Darezzo Rodrigues Nunes
1
| Lucila Castanheira Nascimento
2
|
Ananda Maria Fernandes
3
| Luis Batalha
3
| Catarina De Campos
3
| Ana Gonçalves
3
|
Ana Carolina Andrade Biaggi Leite
2
| Willyane de Andrade Alvarenga
2
|
Regina Aparecida Garcia de Lima
2
| Eufemia Jacob
4
1
School of Nursing at Rio de Janeiro State
University, Rio de Janeiro, Brazil
2
University of São Paulo at Ribeirão Preto
College of Nursing, Ribeirão Preto, Brazil
3
UICISA:E, Nursing School of Coimbra,
Coimbra, Portugal
4
School of Nursing, University of California
Los Angeles, Los Angeles, California
Correspondence
Michelle Darezzo Rodrigues Nunes, School
of Nursing at Rio de Janeiro State University,
Rio de Janeiro, Brazil.
Email: mid13@hotmail.com
Funding information
Fundação de Amparo à Pesquisa do Estado
de São Paulo, Grant/Award Number:
2010/20055‐6 and 2012/00091‐3;
Fundação para a Ciência e a Tecnologia,
Grant/Award Number: PTDC/PSI‐
PCL/114652/2009; Alex's Lemonade Stand
Foundation for Childhood Cancer, Grant/
Award Number: P30NR005041; Canadian
Institutes of Health Research
Abstract
Purpose: To compare sleep and health‐related quality of life (HRQOL) in children and
adolescents with cancer who had pain, with those who had no pain during
hospitalisation.
Method: A prospective comparative study was used to collect data from paediatric
oncology units in three countries (Portugal, Brazil, USA). Participants (n = 118;
8–18 years) completed the Quality of Life Inventory (PedsQL) Cancer module, which
includes a pain subscale, and wore a wrist actigraph for at least 72 hr.
Results: Almost half of the participants (48.3%) reported having pain. Sleep patterns
were not affected by pain. Girls, adolescents and patients diagnosed with leukaemia/
lymphoma who reported pain, had significantly lower HRQOL scores. Low sleep du‐
ration and HRQOL were found, irrespectively of pain status.
Conclusions: The low sleep duration and HRQOL score in children and adolescents
with cancer highlight the importance of physical and psychosocial nursing interven‐
tions during hospitalisation. The mediating effect of gender, age and diagnoses on the
relation between pain and HRQOL needs to be further understood.
KEYWORDS
adolescents, cancer, children, pain, quality of life, sleep