https://doi.org/10.1177/1540796919843147
Research and Practice for Persons
with Severe Disabilities
1–16
© The Author(s) 2019
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DOI: 10.1177/1540796919843147
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Research
“What I Want to Do as a Father Is
Be There”: Constructions of School
Involvement for Fathers of Children
with Complex Disabilities
Nadya Pancsofar
1
, Jerry G. Petroff
1
, Shridevi Rao
1
,
and Alyssa Mangel
1
Abstract
Fathers of children with complex disabilities can play an important role in the development and learning of
their children; however, very little is known about their school involvement experiences. We conducted
semi-structured interviews with 15 fathers of children with complex disabilities to learn how these fathers
perceived their involvement in their children’s education and schooling. Fathers constructed their school
involvement with a consideration of their work and co-parenting experiences. Their employment was
perceived as a form of indirect involvement in their children’s education, but could also be associated
with barriers to more direct school involvement. Fathers also discussed the role of the co-parenting
relationship in their school experiences and identified several factors that contributed to a greater
involvement of mothers in school settings. Among these were a perceived unique expertise of mothers
and school environments that were more welcoming to mothers. They also discussed some potentially
negative ramifications of being less involved in school settings, compared with mothers.
Keywords
fathers, school involvement, home–school collaboration, autism, deafblindness
Over the past several decades, there has been an increase in research on father involvement in children’s
education and learning (Cabrera & Tamis-LeMonda, 2014; Lamb, 2010). Recent research has moved away
from unidimensional characterizations of fathers that focused on father presence or absence to a broader
consideration of the many roles fathers play in the developmental and educational experiences of their chil-
dren (Lamb, 2010; Pancsofar, Vernon-Feagans, Odom, & The Family Life Project Investigators, 2013).
However, this extant literature remains almost exclusively focused on fathers of typically developing chil-
dren, while very few studies have considered the school involvement experiences of fathers of children with
disabilities, and even fewer studies considering fathers of children with complex disabilities. For the pur-
poses of this research, the term complex disability describes a set of developmental challenges that require
highly specialized and unique supports. In addition, these individuals may present with an array of health-
related challenges especially in the initial stages of human development. This population includes children
assigned the label of deafblindness, severe-profound intellectual disabilities, and autism. Research on father
involvement in the educational experiences of children with complex disabilities can inform the work of
1
The College of New Jersey, Ewing, NJ, USA
Corresponding Author:
Nadya Pancsofar, School of Education, The College of New Jersey, 2000 Pennington Rd., P.O. Box 7718, Ewing, NJ 08628, USA.
Email: pancsofa@tcnj.edu
843147RPS XX X 10.1177/1540796919843147Research and Practice for Persons with Severe DisabilitiesPancsofar et al.
research-article 2019