Tell it to Me Straight: The Benefits (and Struggles) of a Consumer-
driven Assessment Process
Joy S. Kaufman,
1
Michelle Abraczinskas,
2
and Ida S. Salusky
3
Highlights
• Training approach for community-based participatory research (CBPR) is provided.
• Data collected by consumer-research team were seen as more authentic and resulted in greater use.
• Lessons learned about overcoming common barriers in a CBPR approach are presented.
© 2019 Society for Community Research and Action
Abstract Community-based Participatory Research
(CBPR), where consumers participate in the design and
execution of an evaluation, holds promise for increasing
the validity and usefulness of evaluations of services.
However, there is no literature comparing methods and
outcomes of studies conducted by professional evaluators
with those conducted through a consumer-driven
evaluation process. We attempt to fill this gap by
presenting the methods and results from a qualitative
evaluation conducted by professional evaluators along
with one conducted by a team of consumer researchers
who engaged in a CBPR process. This paper includes: (a)
methods, and findings that emerged from these
evaluations each tasked with examining similar issues
within the same community; (b) description of the process
used to train the team of consumer researchers whose
economic and educational backgrounds are different than
most evaluators; and (c) lessons learned about how to
prepare for and work with common barriers to
implementing a CBPR evaluation.
Keywords Community-based participatory research
Consumer researchers
Literature Review
Community-based participatory research (CBPR) embod-
ies heterogeneous approaches to the democratization of
scientific inquiry (Cargo & Mercer, 2008). While no uni-
versal boundaries exist around what constitutes CBPR,
generally accepted principles include: (a) the inclusion of
stakeholders/community members in the entire research
process (i.e., conceptualization and implementation, analy-
sis, and dissemination of findings); (b) power-sharing rela-
tionships between researchers and stakeholders; (c)
privileging local knowledge and the emic perspective; and
(d) engagement in a transformative process. Through this
process, historically marginalized stakeholders are empow-
ered to take on leadership positions. Researchers become
more aware of their strengths and limitations in advancing
complex research agendas involving economic, environ-
mental, health, and social disparities (Israel et al., 2005;
Minkler, 2004; Shultz, Krieger, & Galea, 2003). In addi-
tion to use in research, for more than 20 years participa-
tory approaches have also been utilized in program
evaluation (e.g., community-based participatory evaluation
(CBPE); Abuel, 1999).
The participatory and power-sharing nature of CBPR is
critical to conducting trustworthy and credible evaluation
and research that reflects the lived experiences of partici-
pants (Tremblay, Martin, Macaulay, & Pluye, 2017).
Power-sharing in CBPR can begin to repair relationships
damaged by the scientific community’s history of exploit-
ing the poor, vulnerable, and oppressed. Repairing these
relationships is necessary if the aim of the work is to truly
understand and meet the needs of communities. Repara-
tions occur through the decolonization of knowledge and
power shifting that takes place when community
✉ Joy S. Kaufman
joy.kaufman@yale.edu
1
Division of Prevention and Community Research, Yale Univer-
sity School of Medicine, New Haven, CT, USA
2
Yale University School of Medicine, New Haven, CT, USA
3
Department of Psychology, DePaul University, Chicago, IL,
USA
Am J Community Psychol (2019) 0:1–11
DOI 10.1002/ajcp.12373
ORIGINAL ARTICLE