105 © Springer Nature Switzerland AG 2020
J. A. Magnuson, B. E. Dixon (eds.), Public Health Informatics and Information Systems, Health
Informatics, https://doi.org/10.1007/978-3-030-41215-9_7
Data Sources and Data Tools:
Preparing for the Open Data
Ecosystem
Edward Mensah and Johanna L. Goderre
Introduction
Social, legal, political, and technological changes
have led to an expectation that data collected by
or funded by the government for administration,
research, and other activities should be widely
available to the public. Public health and other
organizations frequently face a mandate of data
transparency from federal initiatives, funders,
citizens, and benefciaries of the organizations’
programs. Technological advances have made it
easier and more affordable for many types of gov-
ernment and non-governmental organizations to
collect, manage, store, publish, and use data about
programs, clients, and systems. As organizations
are increasingly called upon to deliver measur-
able and effective services, qualitative and quan-
titative facts—data—have become a high priority
in every offce. When meaningfully aggregated,
contextualized, and prioritized, these data form
the building blocks of important messages—
information—about the public health system.
Information Systems (IS) constitute the physical,
human, and electronic infrastructures that support
the use of data in the service of discovery.
History and Context of Data
Legal, ethical, and regulatory responsibilities
are attached to data at all stages, from collection
through management and application. Any indi-
vidual who creates or combines data and then
makes it freely available to others for re-use or
redistribution—open data—contributes to the
larger ecosystem of transparent, accessible data.
Released data must maintain reasonable privacy
for any individual represented in the data, com-
ply with the consent and license associated with
the data, and meet other stipulations. Data may
be released at varying levels of access—open,
registered, or controlled (Fig. 7.1). Fully open
access data will have no limitations to use the
data. Recently, registered access data environ-
E. Mensah
University of Illinois at Chicago, School of Public
Health, Chicago, IL, USA
e-mail: dehasnem@uic.edu
J. L. Goderre (*)
Essex Management, LLC, Rockville, MD, USA
e-mail: jgoderre@essexmanagement.com
7
Learning Objectives
1. List and discuss the fve characteristics
of good data.
2. List and discuss principles to strategi-
cally evaluate data sources and data.
3. Describe publicly available data
resources and tools.
4. Describe the process of preparing a
dataset for analysis.