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DE GRUYTER Multicultural Learning and Teaching. 2018; 20160010
Brenda L. Barrio
1
/ Yun-Ju Hsiao
2
/ Nydia Prishker
3
/ Callie Terry
3
The Impact of Culture on Parental Perceptions
about Autism Spectrum Disorders: Striving for
Culturally Competent Practices
1
Washington State University, Cleveland 334 PO Box 642114, Pullman, WA 99164, USA, E-mail: brenda.barrio@wsu.edu
2
Washington State University Tri-Cities, Richland, WA 99354, USA
3
University of North Texas, Denton, TX 76203, USA
Abstract:
Despite the increasing number of children from culturally and linguistically diverse (CLD) backgrounds in
the United States, limited research exists synthesizing what is known about the prevalence and diagnosis of
autism spectrum disorder (ASD) in these communities. Children from culturally and linguistically diverse
backgrounds are disproportionately diagnosed with ASD and, there is a need for practitioners and educa-
tors to be culturally competent at addressing challenges and practices related to ASD for children and youth.
The purpose of this paper is to review the literature related to parental perspectives on ASD, in children from a
wide range of culturally diverse backgrounds to provide information and resources to practitioners about the
importance to strive for cultural competence in practice-related work.
Keywords: autism spectrum disorder, multicultural issues, parent perceptions, cultural competency
DOI: 10.1515/mlt-2016-0010
Individuals with autism spectrum disorder (ASD) are often characterized by “challenges in social interactions
and communication skills, and by the presence of repetitive behaviors and restricted interests” (Davidson &
Henderson, 2010, p. 463). Additionally, children with ASD are often distinguished from their peers in their
greater likelihood of engaging in what many consider to be problem behaviors (Macintosh & Dissanayake,
2006). There is a current trend in society to classify individuals with ASD according to characteristics they
exhibit that are non-conforming to “normalized” characteristics in society. Davidson (2008) points out how
expert accounts of ASD often perpetuate stereotypes, effectively denying a voice to these individuals. Advocates
for ASD tend to use a social model of disability, where disabilities are described, in large part, as resulting from
society’s intolerance of human differences, rather than a medical model that describes disability regarding of a
person’s physical and cognitive deficits (Silverman, 2011).
Many individuals with ASD struggle with the experience of not belonging (Kapp et al., 2013). Also, diverse
cultural and ethnic backgrounds could add to the perplexity of what individuals with ASD experience, in
particular, how practitioners from a dominant culture could perceive or misunderstand cultural differences due
to the lack of cultural competency. Need forpractitioners and educators to be culturally competent regarding
their treatments and practices for children and youth with ASD continues to exist (Ravindran & Myers, 2012).
The objective of this paper is to review the history and the literature of practices for culturally and linguistically
diverse (CLD) students with ASD as well as generate knowledge related to parental perceptions of ASD from a
wide range of cultural diverse backgrounds in order to provide encouragement to practitioners and researchers
to strive for cultural competence in their practice.
Multicultural aspects of ASD
Estimates in recent years have demonstrated that ASD is more common than it has been thought. According to
data from the Centers for Disease Control and Prevention (CDC), about one in 59 children have been diagnosed
with ASD (CDC, 2018). ASD is prevalent in all racial, ethnic, and socioeconomic groups, but it is well known
that the disorder is more common among boys than girls (Center for Disease Control and Prevention, (Center
for Disease Control and Prevention, 2014)). There is also a wide variation of first diagnosis across different
racial and ethnic groups. For example, studies have shown that the prevalence of ASD among Hispanic/Latinx
children is lower than the prevalence of ASD for non-Hispanic/Latinx children (Morrier & Hess, 2010; Morrier,
Hess & Heflin, 2008; Palmer et al., 2010; Travers, Tincani & Krezmien, 2011).
Brenda L. Barrio is the corresponding author.
© 2018 Walter de Gruyter GmbH, Berlin/Boston.
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