https://doi.org/10.1177/1403494819893241
© Author(s) 2020
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DOI: 10.1177/1403494819893241
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Scandinavian Journal of Public Health, 1–2
In his Letter to the Editor, Michiel Tack [1] addresses
a concern that our reported prevalence of chronic
fatigue syndrome (CFS) is misleading, as it is higher
than in many other publications. We understand this
concern, as it relates to some of the fundamental
problems within the discipline of functional somatic
disorders (FSD). First, we have multiple consensus-
based definitions for each syndrome, some of which
are developed in highly skewed samples and not vali-
dated in general populations. Second, there is an
urgent need for more valid (i.e. data-driven) pheno-
typic approaches that can be used as the gold stand-
ard for defining FSD. Third, in epidemiological
research, we need broader symptom clusters that
include both severely ill individuals but also those
who have the syndrome in abbreviated or milder
forms [2–5].
In light of these fundamental problems, DanFunD
was initiated 10 years ago as a large-scale epidemio-
logical study with the aim of unravelling the epidemi-
ology of various FSD and diagnostic analogues [6].
In order to achieve this aim, we included standard
criteria for five common syndromes, which:
(1) were manageable and validated for use in large
epidemiological studies on general populations
(2) did not have symptom overlap (many definitions
of CFS also include pain and various other
symptoms)
(3) allowed us to gain a genuine picture of the overlap
of syndromes without the risk of obtaining an
artificial overlap due to overlap of diagnostic
criteria
In order to maintain a broad and open-minded
approach to FSD, DanFunD includes three different
delimitations: first, a traditional diagnostic approach
consisting of five common syndromes that we relieved
from artificial overlap in diagnostic criteria (CFS
being one of these); second, the unifying bodily dis-
tress syndrome diagnostic construct; and third, eight
symptom profiles [7].
We agree, however, that our obtained prevalence
of 8.6% is high compared with other studies on
CFS, and concur that this is easily explained by our
use of a measure of severe fatigue for assigning case
status of CFS. Consequently, one could argue that
the reported prevalence describes the number of
individuals with severe and abnormal fatigue rather
than accounts for the number of individuals with
CFS. This should have been described more clearly
in the paper.
We are aware of the limitations of using self-reported
questionnaires as a case assignment method, as stated
in the paper. We have approached this problem in
another paper, currently in revision. Here, a diagnostic
interview, performed by trained family physicians via
telephone, was conducted with a stratified subsample
Response to Letter to the Editor: A misleading CFS prevalence
estimate in DanFunD
MARIE WEINREICH PETERSEN
1
, ANDREAS SCHRöDER
1
, TORBEN JøRGENSEN
2,3,4
,
EVA øRNBøL
1
, THOMAS MEINERTZ DANTOFT
2
, MARIE ELIASEN
2
, TINA WISBECH
CARSTENSEN
1
, LENE FALGAARD EPLOV
5
& PER FINK
1
1
The Research Clinic for Functional Disorders and Psychosomatics, Aarhus University Hospital, Denmark,
2
Center for
Clinical Research and Prevention, Bispebjerg and Frederiksberg Hospital, Denmark,
3
Department of Public Health, Faculty
of Health and Medical Sciences, University of Copenhagen, Denmark,
4
Faculty of Medicine, Aalborg University, Denmark,
and,
5
Mental Health Centre Copenhagen, The Capital Region of Denmark, Denmark
893241SJP 0 0 10.1177/1403494819893241Scandinavian Journal of Public Health
other 2020
Correspondence: Marie Weinreich Petersen, The Research Clinic for Functional Disorders and Psychosomatics, Aarhus University Hospital, Nørrebrogade
44, building 2C, 8000 Aarhus C, Denmark. E-mail: mawept@rm.dk