Relevance of Canadian health care evaluaon project [CANHELP] Quesonnaire
in Assessment of Sasfacon of End of Life Care Provided in Paents and Families
Receiving Home Based Palliave Care: A pilot Study
Ghoshal A, et al., BAOJ Pall Medicine 2015 1: 2
1: 007
BAOJ Pall Medicine, an open access journal Volume 1; Issue 2; 007
Ghoshal A
1*
and Damani A
1
1
Tata Memorial Center, Mumbai, India
BAOJ Palliative medicine
*Corresponding author: Ghoshal A, Tata Memorial Center, Mumbai,
India, E- mail: drarunangshu@hotmail.com
Sub Date: 4 August, 2015, Acc Date: 14 August, 2015, Pub Date: 17
August, 2015
Citaon: Ghoshal A and Damani A (2015) Relevance of Canadian
health care evaluaon project [CANHELP] Quesonnaire in Assessment
of Sasfacon of End of Life Care Provided in Paents and Families
Receiving Home Based Palliave Care: A pilot Study. BAOJ Pall Medicine
1: 007.
Copyright: © 2015 Ghoshal A, et al. This is an open-access arcle
distributed under the terms of the Creave Commons Aribuon
License, which permits unrestricted use, distribuon, and reproducon
in any medium, provided the original author and source are credited.
Case Report
Abstract
Introducon
Good Palliative care provision should culminate with a high
quality end of life care. Canadian Health Care Evaluation Project
(CANHELP) questionnaire is a means to assess patient and family
satisfaction of end-of-life care (EOL) provided.
Aims
Study the relevance of CANHELP questionnaire in patients and
families enrolled under home based palliative care. To identify
unmet needs of end of life care and use this data to bridge the gaps
in care provision.
Methods
A cross-sectional study conducted in patients and their families
who are enrolled for home based palliative care with Palliative
Medicine Department, Tata Memorial Centre. CANHELP
questionnaire is a 1-5 Like scale assessing satisfaction of End of Life
Care provided with 38 patient centered questions and 40 family
centered questions.
Results
Both patients and their caregivers gave highest importance to
illness management (patient mean 67.63 sd 2.67, caregiver mean
45.83, sd 7.56) and expressed highest satisfaction (patient mean
58.58 sd 5.61, caregiver mean 40.33 sd 5.55) with same. Significant
differences were found in importance and satisfaction regarding
illness management (p<0.001), benefit of communication and
decision-making (p<0.001), well-being (p<0.001) and general
satisfaction of care received [p<0.001] between patients and their
families. ere are communication gaps regarding discussions
about the use of life sustaining technologies, comfortable talking
with relative about his/ her illness, dying, and death and discussions
with relative during the past month about wishes for future care in
the event he or she is unable to make those decisions which needs
to be improved.
Conclusion
CANHELP questionnaire is relevant to patients and their families
in assessing satisfaction of end of life care services provided.
Keywords: Home based palliative care; CANHELP questionnaire;
End of life care.
Introducon
World Health Organization [WHO] estimates that on an average
60 percent of people who die will benefit from palliative care before
death [1]. India has a population of 1.22 billion and a death rate
of 7.39 deaths/1,000 population [2]. So each year more than 7.5
million individuals in India could benefit from palliative care, but
than 2% of the needy population have access to it [3]. Also it is
widely believed that Quality end-of-life care should be espoused as
a ‘‘right’’ of all citizens and a responsibility of all the Governments.
Unfortunately, recent studies continue to identify significant
gaps in care provision and there remain ample opportunities for
improvement [4-11]. Historically, improving EOL care has been
hampered by inadequate definitions of and a lack of validated
measurement tools for quality EOL care, particularly from the
perspective of the seriously ill patient and/ or their family members
[12,13].
e Canadian Health Care Evaluation Project [CANHELP]
questionnaire was developed and validated to assess both patient
and family satisfaction with EOL care provided to patients who
have a variety of diagnoses across diverse settings [14]. is
questionnaire is more practicable for developing countries where
families are available to provide the care. A study by Hwang MS,
Ryu HS concluded that a nurse initiated home based palliative
care program is an effective measure to reduce patients’ pain
and symptom experience, to improve patient QOL and decrease
family burden [15]. A study by Banerjee P demonstrated that an
affordable home based palliative care services are more preferred
by the society in comparison to hospice, hospital or self-contained