International Journal of Research in Medical Sciences | June 2020 | Vol 8 | Issue 6 Page 2140
International Journal of Research in Medical Sciences
Sharma S et al. Int J Res Med Sci. 2020 Jun;8(6):2140-2148
www.msjonline.org pISSN 2320-6071 | eISSN 2320-6012
Original Research Article
Comparison of stressful life events among family caregivers of cancer,
mental retardation and schizophrenia patients leading to stress, anxiety
and depression and its effect on quality of life
Sandeep Sharma, Anant K. Rathi*, Kamal K. Verma, Divya Bishnoi
INTRODUCTION
Care giving and care receiving can occur at any point in
the life-course and is typically associated with chronic
illnesses or disabilities. It results in loss of independence
and disturbance in proper day-to-day functioning of the
caregiver. There is no standard definition of family care
giving which can be used consistently from one study to
another.
1
What the term care giving means is not always
clear and frequently varies with the purpose for which
such definitions are used.
2
Focus on the role of family in the life of a person with
different physical or mental disorders has been dual.
Earlier the focus had been on the possible etiological role
of the family in disease, now it seems to be a paradigm
shift and family now is being perceived as a “reactor” to
disease of a member.
3
Family is the main source of
support for the persons with disabilities in any society.
4
With advancement in the medical sciences in prolonging
the life of a diseased person and increasing change in
health policies to integrate the persons with illness in the
community, family care giver has now become a major
Department of Psychiatry, S. P. Medical College, Bikaner, Rajasthan, India
Received: 22 March 2020
Accepted: 28 April 2020
*Correspondence:
Dr. Anant K. Rathi,
E-mail: anantkumarrathi@gmail.com
Copyright: © the author(s), publisher and licensee Medip Academy. This is an open-access article distributed under
the terms of the Creative Commons Attribution Non-Commercial License, which permits unrestricted non-commercial
use, distribution, and reproduction in any medium, provided the original work is properly cited.
ABSTRACT
Background: Mental retardation (MR), schizophrenia and cancer are chronic disorders, requiring long term treatment
along with family support. Principal caregiver is usually nonprofessional family person who play a pivotal role in
supporting the patient medically, emotionally and financially which in turn affects their own health and quality of life.
To identify stressful life events, level of anxiety, stress, depression and Quality of life in these family caregivers (FC),
this study was planned.
Methods: After gaining consent, the FC were assessed on Presumptive Stressful Life Events Scale (PSLE),
Depression Anxiety Stress Scale (DASS) and WHO Quality of Life -Bref Scale (WHOQOL-Bref). Data so gained
was analyzed by SPSS-21 and results were drawn.
Results: 66 FC of cancer patients, 39 FC of MR patients and 53 FC of Schizophrenia patients were assessed. All three
groups were found to be matched socio-demographically. On PSLE Mean of total stressful life events for cancer FC
was 7±1.5, for MR 6.02±1.5 and for schizophrenia FC was 5.75±1.70 and this difference was statistically significant.
Mean of total undesirable life events was 5.31±1.3, 4.33±1.34 and 3.86±1.46 respectively and this difference was also
statistically significant. Similarly difference in mean stress score of total life events and for undesirable events was
also statistically significant. On DASS scale no statistically significant difference was found within the groups.
Quality of life was significantly low depicting high impact on physical health and social life of these care givers.
Conclusions: Family Caregivers of cancer, mental retardation and schizophrenia groups are highly affected and there
is urgent need to address these issues for early diagnosis and treatment.
Keywords: Anxiety, DASS, Depression, Family Caregivers, PSLE, Stress, WHOQOL-BREF
DOI: http://dx.doi.org/10.18203/2320-6012.ijrms20202257