Desire for hastened death: how do professionals in
specialized palliative care react?
†
M. Galushko
1,‡
, G. Frerich
1
*
,‡
, K. M. Perrar
1,6
, H. Golla
1,6
, L. Radbruch
2,3,6
, F. Nauck
4
, C. Ostgathe
5
and R. Voltz
1,6,7
1
Center for Palliative Medicine, University Hospital of Cologne, Köln, Germany
2
Department of Palliative Medicine, University Hospital Bonn, Bonn, Germany
3
Palliative Care Center, Malteser Hospital Seliger Gerhard Bonn/Rhein-Sieg, Bonn, Germany
4
Departmentof Palliative Medicine, University Hospital, Göttingen, Germany
5
Division of Palliative Medicine & Comprehensive Cancer Center, CCC Erlangen-EMN, University Hospital Erlangen, Friedrich-Alexander-Universität
Erlangen-Nürnberg, Erlangen, Germany
6
Center for Integrated Oncology, (CIO), Köln/Bonn, Germany
7
Clinical Trials Center Cologne, (ZKS), Köln, Germany
*Correspondence to:
Center for Palliative Medicine,
University Hospital of Cologne,
Köln, Germany. E-mail: gerrit.
frerich@uk-koeln.de
†
Part of this study was presented
as a poster at the 9th (2013, PB
KT28) and the 10th (2014,
PB106) German National
Palliative Care Congress. The
background of the study was
briefly described as part of a
German article ‘Suizidalität in der
Palliativmedizin’ in ‘Psychotherapie
im Alter’, (Hirsch, R. D., Lindner, R.,
and Wächtler, C. eds.),
1/11, (pp. 27–42), 3/11.
‡
Both authors contributed
equally to this work.
Received: 1 September 2014
Revised: 4 August 2015
Accepted: 10 August 2015
Abstract
Objective: Desires for hastened death (DHD; wish to hasten death is also in use) are prevalent in
terminally ill patients. Studies show that health professionals (HP) are often underprepared when
presented with DHD. HPs in specialized palliative care (SPC-HP) often encounter DHD. This study
aimed to identify SPC-HP responses to DHD in daily practice and their corresponding functions.
Methods: Narrative interviews were conducted with 19 SPC-HPs at four German University
Hospitals. Transcripts were analyzed using the documentary method. An inventory of established
responses to DHD was compiled, and their corresponding functions in the context of the patient–
SPC-HP interaction were reconstructed.
Results: Twelve response categories and six corresponding functions were identified. On the patient
level, responses categorized as symptom control, exploring the reasons and generating perspective,
reorientation, and hope were particularly used to ease the patient’s burden. On the interaction level,
creating a relationship was fundamental. On the SPC-HP level, various methods served the functions
self-protection and showed professional expertise.
Conclusions: Profound personal and professional development is necessary to respond to the
inherent challenges presented by DHD. Establishing helpful relationships with patients is essential
regardless of SPC-HP specialization. SPC-HPs should maximize their skills in establishing and
maintaining relationships as well as strengthening their own resilience, possibly in specific training
courses.
Copyright © 2015 John Wiley & Sons, Ltd.
Introduction
The desire for hastened death (DHD; wish to hasten death
is also in use) is reported by up to half of terminally ill
cancer patients and is strongly and persistently expressed
by nearly 10% [1–4]. On-going discussions surrounding
the legalization of euthanasia and physician-assisted
suicide show that there is great uncertainty about how to
respond to DHD [5]. This is true not only for society as a
whole but also for health professionals (HPs) in palliative
care who often encounter DHD.
In the Netherlands, almost 50% of general practitioners
try to avoid the issue of euthanasia, finding it emotionally
burdensome [6]. Oncology nurses often feel underpre-
pared when responding to a DHD [7]. Guidelines for
addressing terminally ill patients’ psycho-social and exis-
tential distress are available [8–11], however, with a lack
of evidence-based guidelines for responding to DHD
[12], due also to the lack of a generally accepted concept
[13–15].
In Germany, more than 90% of patients in specialized
palliative care (SPC) have advanced cancer [16], and HPs
working there (SPC-HP) [17] regularly encounter DHD.
While it is generally assumed that DHD are often altered
once effective palliative care is provided [18,19], what is
not known is how SPC-HPs respond when encountering
DHD. Thus, the aim of this study was to reconstruct
experience-based knowledge on how SPC-HPs respond to
DHD, what functions SPC-HPs’ strategies have, and
whether they refer to existing guidelines [9,11].
Materials and methods
Legal framework
Euthanasia is forbidden in Germany, as detailed in §216
StGB (national criminal code). Assisted suicide is not
Copyright © 2015 John Wiley & Sons, Ltd.
Psycho-Oncology
Psycho-Oncology 25: 536–543 (2016)
Published online 16 September 2015 in Wiley Online Library (wileyonlinelibrary.com). DOI: 10.1002/pon.3959