https://doi.org/10.1177/1054773818803741
Clinical Nursing Research
1–23
© The Author(s) 2018
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DOI: 10.1177/1054773818803741
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Research Article
The Capture
Gap: Implantable
Cardioverter–
Defibrillator Quality
of Life
Daniel A. Hopgood, PhD, RN
1,4
,
Richard J. Czosek, MD
2
, Tamilyn Bakas, PhD, RN
1
,
Nicole Garritano, DNP, PNP
3
,
and Gordon L. Gillespie, PhD, RN
1
Abstract
We aimed to compare salient characteristics and antecedents of quality of
life (QOL) in adolescents and young adults with implantable cardioverter–
defibrillators (ICDs) from qualitative methods with quantitative measurement
of QOL and correlations between QOL (PedsQL) and measured participant
characteristics. Concurrent parallel mixed methods design was used to
collect survey data from the PedsQL electronic health record, demographic
questionnaire, and semistructured interview data. A convenience sample of
16 individuals with ICDs, aged 13 to 25 years, was obtained from a tertiary
pediatric facility. Overall QOL and subdomains of physical, psychosocial, and
academic/work were examined by PedsQL and visual analog scale. Select
demographics were collected to develop a participant profile. Females
with ICDs appear to be at risk of poor QOL given some unknown factors.
Financial status of the individual and the family was positively related to
1
University of Cincinnati, OH, USA
2
Cincinnati Children’s Hospital Medical Center, OH, USA
3
Indiana University School of Nursing, IN, USA
4
Ohio University, Athens, OH, USA
Corresponding Author:
Daniel A. Hopgood, School of Nursing, Ohio University, Grover Center E329, 1 Ohio
University Drive, Athens OH 45701-2979, USA.
Email: hopgoodd@ohio.edu
803741CNR XX X 10.1177/1054773818803741Clinical Nursing ResearchHopgood et al.
research-article 2018