Working the edges of Posthuman disability studies: theorising with disabled young people with life-limiting impairments Kirsty Liddiard , Sally Whitney, Katy Evans, Lucy Watts, Emma Vogelmann, Ruth Spurr, Carrie Aimes, Katherine Runswick-Cole and Dan Goodley School of Education and iHuman, University of Shefeld, Shefeld, UK Abstract This paper is built upon an assumption: that social theory can be generated through a meaningful engagement with a co-researcher group of disabled young people. Our co-researchers are theoretical provocateurs and theorists in their own right who, through their activism and writing, are challenging us to reconsider the meaning of life, death and disability. Their work on our funded Economic and Social Research Council (ESRC) project has enabled us to consider the promise and potential of humanist and posthuman epistemologies, theories, methodologies, interventions and activisms. The paper introduces the research, the authors of this paper (academics and co-researchers) and then explores three layers of analysis that work the edges of posthuman thinking; sovereign and assembled selves; affects and desires; mourning and afrmation. We conclude by asserting that as a research team we are engaging with a DisHuman approach to theory and activism: one that blends the pragmatics of humanism with posthuman possibilities. Keywords: disability, youth, palliative, coproduction, research Introduction This paper is built upon an assumption: that social theory can be generated through a mean- ingful engagement with a group of disabled young people. This paper understands co-research- ers of disabled young people as theorists and, crucially, promotes them as theoretical provocateurs. It is not simply the case that young people would explicitly identify themselves through the language or concepts of theory. Nor would they necessarily identify as theoreti- cians. Rather, our work with them has demonstrated the possibilities that they offer us to think about the world in different ways, which we offer here as but one denition of theory. Our interest in posthuman disability studies has been heightened through our work on the research project, Life, Death, Disability and the Human: Living Life to the Fullest (hereby Liv- ing Life to the Fullest). Our study takes place in the UK with disabled young co-researchers via a Co-researcher Collective - currently ve disabled young women aged 19-30 who identify as living with life limitingand life-threatening impairments(hereby LL/LTIs) - from across © 2019 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. Sociology of Health & Illness Vol. xx No. xx 2019 ISSN 0141-9889, pp. 115 doi: 10.1111/1467-9566.12962