Working the edges of Posthuman disability studies:
theorising with disabled young people with life-limiting
impairments
Kirsty Liddiard , Sally Whitney, Katy Evans,
Lucy Watts, Emma Vogelmann, Ruth Spurr,
Carrie Aimes, Katherine Runswick-Cole and
Dan Goodley
School of Education and iHuman, University of Sheffield, Sheffield, UK
Abstract This paper is built upon an assumption: that social theory can be generated
through a meaningful engagement with a co-researcher group of disabled young
people. Our co-researchers are theoretical provocateurs and theorists in their own
right who, through their activism and writing, are challenging us to reconsider the
meaning of life, death and disability. Their work on our funded Economic and
Social Research Council (ESRC) project has enabled us to consider the promise
and potential of humanist and posthuman epistemologies, theories, methodologies,
interventions and activisms. The paper introduces the research, the authors of this
paper (academics and co-researchers) and then explores three layers of analysis
that work the edges of posthuman thinking; sovereign and assembled selves;
affects and desires; mourning and affirmation. We conclude by asserting that as a
research team we are engaging with a DisHuman approach to theory and activism:
one that blends the pragmatics of humanism with posthuman possibilities.
Keywords: disability, youth, palliative, coproduction, research
Introduction
This paper is built upon an assumption: that social theory can be generated through a mean-
ingful engagement with a group of disabled young people. This paper understands co-research-
ers of disabled young people as theorists and, crucially, promotes them as theoretical
provocateurs. It is not simply the case that young people would explicitly identify themselves
through the language or concepts of theory. Nor would they necessarily identify as theoreti-
cians. Rather, our work with them has demonstrated the possibilities that they offer us to think
about the world in different ways, which we offer here as but one definition of theory.
Our interest in posthuman disability studies has been heightened through our work on the
research project, Life, Death, Disability and the Human: Living Life to the Fullest (hereby Liv-
ing Life to the Fullest). Our study takes place in the UK with disabled young co-researchers
via a Co-researcher Collective - currently five disabled young women aged 19-30 who identify
as living with ‘life limiting’ and ‘life-threatening impairments’ (hereby LL/LTIs) - from across
© 2019 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and
reproduction in any medium, provided the original work is properly cited.
Sociology of Health & Illness Vol. xx No. xx 2019 ISSN 0141-9889, pp. 1–15
doi: 10.1111/1467-9566.12962