ABSTRACT
Objective: (1) To study seven unrelated Spanish fam-
ilies with multiple endocrine neoplasia type I (MEN I),
describing clinical features and investigating the presence
of germline mutations in the MEN1 gene, and (2) to estab-
lish reference values for pancreatic polypeptide and gas-
trin after a standardized test meal in a healthy control
group, analyzing the usefulness of this test for detecting
neuroendocrine gastroenteropancreatic tumors in subjects
with MEN I.
Methods: Two or three generations of 7 kindreds with
MEN I, consisting of a total of 39 individual family mem-
bers, were investigated. Three of the families were sub-
jected only to genetic analysis, and the other four families
were also assessed clinically. A group of 23 healthy con-
trol subjects were also studied.
Results: Mutations in the MEN1 gene were found in
six of the seven families studied. Of the 4 families studied
clinically, 12 family members were genetically affected.
In these study subjects, hyperparathyroidism, adrenal ade-
nomas, neuroendocrine gastroenteropancreatic tumors,
and pituitary adenomas developed in 100%, 50%, 16%,
and 12%, respectively. All demonstrated pancreatic
tumors were associated with abnormal results after a test
meal, but 75% of them also showed high basal hormonal
measurements.
Conclusion: Analysis of the MEN1 gene decreases
the total number of subjects who need to undergo repeat-
ed clinical and biochemical studies, but genetic mutations
are not detected in all families with MEN I.
Hyperparathyroidism is the most common manifestation
of the syndrome, but the presence of adrenal adenomas
has probably been underestimated. Ingestion of a
standardized test meal for stimulation of gastrin and
pancreatic polypeptide could be a complementary proce-
dure for diagnosing gastroenteropancreatic tumors in
selected patients with MEN I in whom basal gastrin and
pancreatic polypeptide levels are normal. (Endocr Pract.
2000;6:13-19)
INTRODUCTION
Multiple endocrine neoplasia type I (MEN I) is an
autosomal dominant disease characterized by the presence
of tumors affecting the parathyroid glands, anterior pitu-
itary, and gastroenteropancreatic (GEP) tissues (1). Other
manifestations include thyroid and adrenal adenomas, car-
cinoid tumors, and lipomas. Periodic screening of family
members is recommended to facilitate early diagnosis and
to decrease the morbidity and mortality associated with
this syndrome (2,3). Recently, the MEN1 gene was identi-
fied in chromosome 11q13 (4,5). The presence of
germline mutations in the MEN1 gene allows the detection
of gene carriers and reduces the need for periodic bio-
chemical, radiologic, and clinical screenings. In the cur-
rent investigation, we studied seven unrelated Spanish
families, searching for mutations in the MEN1 gene and
characterizing their disease phenotypes. The usefulness of
a standardized test meal measuring gastrin and pancreatic
polypeptide (PP) for the detection of endocrine pancreatic
tumors was assessed, and reference values for the test
were established.
SUBJECTS AND METHODS
Patient Cohort
Two or three generations of 7 families, consisting of
39 individual members (22 women and 17 men; mean age,
38 ± 16 years) were studied (Fig. 1). Informed consent
was obtained from all patients, and the protocol was
GENETIC, CLINICAL, AND BIOCHEMICAL ANALYSIS
OF UNRELATED SPANISH FAMILIES
WITH MULTIPLE ENDOCRINE NEOPLASIA TYPE I
Ana Chico, PhD,
1
Lluis Gallart, PhD,
1
Jesús M. Martín-Campos, MD,
1
Lluis Catasús, MD,
1
Carmen Mayoral,
1
Eugenia Mato, MD,
1
Federico Tortosa, MD,
1
Lluis Bernà, MD,
1
José Rodríguez-Espinosa, MD,
1
Francisco Blanco-Vaca, MD,
1
Xavier Matías-Guiu, MD,
1
Alberto de Leiva, MD, PhD,
1
and Dídac Mauricio, MD
2
Submitted for publication March 18, 1999
Accepted for publication August 20, 1999
From the
1
Departments of Endocrinology, Biochemistry, Pathology, and
Nuclear Medicine, Hospital Santa Creu i Sant Pau, Autonomous
University, Barcelona, Spain, and
2
Endocrinology Unit, Hospital Parc
Taulí, Sabadell, Spain.
Address correspondence and reprint requests to Dr. Ana Chico,
Department of Endocrinology, Hospital de la Santa Creu i Sant Pau, Av.
Sant Antoni M
a
Claret 167, 08025 Barcelona, Spain.
© 2000 AACE.
ENDOCRINE PRACTICE Vol. 6 No. 1 January/February 2000 13
Original Article
Abbreviations:
CT = computed tomographic; GEP = gastroenteropan-
creatic; MEN I = multiple endocrine neoplasia type I;
MRI = magnetic resonance imaging; PCR = poly-
merase chain reaction; PP = pancreatic polypeptide