INTERNATIONAL JOURNAL OF MULTIDISCIPLINARY RESEARCH AND ANALYSIS ISSN(print): 2643-9840, ISSN(online): 2643-9875 Volume 06 Issue 02 February 2023 DOI: 10.47191/ijmra/v6-i2-09, Impact Factor: 6.261 Page No. 531-539 IJMRA, Volume 06 Issue 02 Febraury 2023 www.ijmra.in Page 531 The Experience of Family Caregiver's n Caring for Post-Stroke Patients at Home During the Pandemic Covid-19 Cau Kim Jiu 1 , Eristia Novarianda 2 , Usman 3 , Hartono 4 , Wuriani 5 , Kartika Setia Purdani 6 , Afriyanto 7 1,2,3,4,5 Nursing Department, Institut Teknologi dan Kesehatan Muhammadiyah Kalimantan Barat, Pontianak-West Kalimantan. Indonesia 6 Nursing Study Program, Faculty of Health and Pharmacy, University of Muhammadiyah East Kalimantan, Indonesia 7 Faculty of Health Science, Public Health Department, University Muhammadiyah Bengkulu, Indonesia ABSTRACT: Taking care of a family member(s) who suffers from stroke at home especially during the covid-19 pandemic time is unquestionably not easy. This study aimed at exploring the experience of family-caregivers in caring for post-stroke patients at home during the covid-19 pandemic. This qualitative research employed a phenomenological approach with participants consisting of 14 family members who have been caring for post-stroke patients at home during the Covid-19 pandemic in the Pontianak City area. This research began with observation for 3 months which was then followed by interviews and FGDs. The data obtained from the results of in-depth interviews and FGDs were processed using content analysis. The result of his study generated 5 themes regarding the experience of family caregivers in caring for post-stroke patients at home during the Covid-19 pandemic including 1) Changes in caregiver roles, 2) engagement values, 3) spiritual values, 4) Isolation in the surrounding community, 5) The experience of situational anxiety. Considering that both stroke survivors and caregivers of post-stroke patients do not only face several problems and conditions related to stroke and stroke recovery as well as community stigma, but several live scenarios are also provided for them especially during the COVID-19 pandemic. Therefore, further community reintegration ought to exist in the rehabilitation where it can prepare someone who used to suffer from stroke to have ability to do self-reorganization psychologically, physically and socially. KEYWORDS: caregiver, covid-19, experience, family, post-stroke I. INTRODUCTION Americans die every 4 minutes from stroke. In the US, stroke is the number one cause of disability and the fifth leading cause of death (Nayeri, 2014; Torregosa, Sada, 2018). The prevalence of stroke in 2019 was 101.5 million, with details of 77.2 million ischemic stroke, 20.7 million intracerebral hemorrhage, and 8.4 subarachnoid hemorrhage. Statistical data recorded that 610 million people died from stroke in 2020, which has increased from the previous year, 2019 (AHA, 2021; Sveriges officiella Statistics, 2021). Likewise, Oceania and Southeast Asia are the leaders of intracerebral hemorrhage in the world and then become one of the countries with the highest stroke mortality rate as well (AHA, 2021). Furthermore, in Indonesia, one of the Southeastern countries, stroke was the leading cause of death during 2007-2017 (Institute for Health Metrics and Evaluation, 2020) When it strikes, stroke affects the patient and related people (e.g., family) in many ways, and several studies divide the impacts into individual impacts, family impacts, and social impacts (Araújo et al., 2019; Northcott, Moss, Harrison, 2015) Additionally, Physical, psycho intellectual, and individual function, are three categorized of individual impacts resulted from a stroke disease (Bettger, 2018; Broussy et al., 2019; Karuniawati, 2017; Philp et al., 2013). In family impacts, some families feel burdened, but some of them benefit from stroke that attack one of their family members (Agianto and Nuntaboot, 2018; Gillespie & Campbell, 2011; Hesamzadeh, Dalvandi, Maddah, 2015; Karunia, 2016; Somerville et al., 2019). Finally, social impact, where a person and related environment who experience this disease experience decreased social activity, family life problems, and vulnerable relationships with friends and coworkers and other networks (Northcott, Moss, Harrison, 2015). Therefore, stroke survivors need more attention to be able to overcome this situation.