Ethik Med (2000) 12:16–29
Ethische Fragen zur Stammzellentransplantation
aus Nabelschnurblut
Bert Gordijn, Henk Olthuis
Ethical issues with regard to transplantation of cord blood stem cells
Abstract. Definition of the problem: Cord blood banks have been and are still
being set up in many modern states all over the world. Cord blood transplanta-
tion, however, gives rise to a specific set of ethical problems, that must be
cleared up and analyzed before full responsibility can be assumed and the estab-
lishment of banks for frozen cord blood samples and the structural implementa-
tion of cord blood transplantation can be justified. The main ethical issues con-
cerning cord blood stem cell transplantation can be divided into at least six
groups of questions that are closely related. First, there are ethical issues con-
cerning the status of the treatment. Must cord blood transplantation somehow
still be considered an „investigational“ treatment or can it be regarded as accept-
ed therapy? Second, we must face the question of the ownership of the placental
tissue. Third, there are questions regarding the fairness in the collection and dis-
tribution of cord blood. Fourth, there is the issue of informed consent. Fifth,
there is the question of whether how new data from medical testing will be com-
municated to the parents or the donor. Finally, questions related to privacy and
confidentiality need to be addressed. Conclusion: As it is likely in the years to
come that the supply and demand for cord blood will grow, clinicians will in-
creasingly need answers to these ethical questions. Only thoughtful analysis of
the attendant ethical issues of the establishment of banks for frozen blood sam-
ples and the structural implementation of cord blood transplantation can miti-
gate potential problems.
Key words: Cord blood transplantation – Ownership – Informed consent –
Privacy – Confidentiality – Genetic testing – fairness
Zusammenfassung. Im vergangenen Jahrzehnt wurden weltweit Nabelschnur-
blutbanken errichtet. Dies kann jedoch nicht als unproblematisch betrachtet wer-
den, sondern ruft vielmehr eine Reihe ethischer Probleme hervor bzw. könnte in
der Zukunft bestimmte ethische Fragen aufwerfen. Die wichtigsten ethischen
Probleme hinsichtlich der Nabelschnurblutstammzellen-Transplantation lassen
sich in zumindest sechs Problemgruppen fassen, die eng miteinander in Bezie-
Bert Gordijn
Fachbereich Ethik, Philosophie und Geschichte der Medizin, Katholische Universität Nijme-
gen, Postfach 9101, 6500 HB Nijmegen, Niederlande
© Springer-Verlag 2000