Vol. 20, No. 2, Spring 2013 / 5
Copyright © 2013, New Forums Press, Inc., P.O. Box 876, Stillwater, OK 74076. All Rights Reserved.
Parents’ Experiences in the Transition of Students with
Autism Spectrum Disorders to Community College
Edlyn Vallejo Peña Jodie Kocur
California Lutheran University California Lutheran University
Due to the rising number of students with autism spectrum disorders (ASD) attending community colleges and the important role that
parents play in their student’s transition process, the current study aimed to explore the experiences of parents as their student with ASD
transitioned to community college. Eighteen parents of students with ASD who attended community college completed an hour-long
interview regarding their experience assisting their student with the transition. Parents reported playing two predominant roles: (1)
coaching students to navigate campus services, and (2) encouraging students to participate in college more independently. In addition, two
major challenges emerged from parent reports: (1) navigating the Federal Educational Rights and Privacy Act (FERPA), and (2) finding
supportive faculty. Implications for future research as well as recommendations based on the data regarding ways to support students with
ASD and their families as they prepare for this transition are discussed.
T
he dramatic rise in Autism Spectrum diagnoses has
been well documented, with the latest report from
the Center for Disease Control finding that one in 88 in-
dividuals now has an Autism Spectrum Disorder (ASD)
(CDC, 2012). The CDC also suggested that the prevalence
of ASD may be as high as one in 50 children, based on pa-
rental reports (2013). According to the National Institute
of Neurological Disorders and Stroke (2011), “Autism
spectrum disorder (ASD) is a range of complex neurode-
velopment disorders, characterized by social impairments,
communication difficulties, and restricted, repetitive, and
stereotyped patterns of behavior” (para 1). This range
includes individuals with extremely diverse ability lev-
els and combinations of symptoms. While professionals
agree there are likely many genetic and environmental
factors contributing to this increase in prevalence, one of
these factors is likely “an improvement in our ability to
recognize and diagnose higher-functioning individuals
who may have been overlooked in the past” (Adreon
& Durocher, 2007, p. 272). The term high-functioning
autism spectrum disorder (HFASD) has been used to
characterize individuals on the spectrum who do not have
a co-occurring intellectual disability (ID) and includes the
diagnoses of high functioning autism (HFA), Asperger’s
Syndrome (AS), and Pervasive Developmental Disorder,
Not Otherwise Specified (PDD-NOS). Interestingly,
research has shown that the majority of individuals with
an autism spectrum disorder have milder forms of the
disorder, such as Asperger Syndrome (VanBergeijk and
Shtayermman, 2005).
As students with ASD continue to gain access to
early interventions and academic and behavioral supports
in K-12 schools, cognitive and behavioral outcomes will
continue to improve (Adreon & Duracher, 2007). In turn,
colleges will continue to see an increase in the number
of students they serve with ASD (Wei, Yu, Shattuck, Mc-
Cracken, Blackorby, 2012). For individuals with ASD,
college is not only an attainable goal due to their cognitive
ability, but may also be important to their growth in other
ways as well, both practical and psychological. Given
that adults with ASD experience low employment rates
(Barnard, Harvey, Prior, & Potter, 2001; Hurlbutt & Chal-
mers, 2004; Newman, Wagner, Cameto, & Knokey, 2009),
achieving their goals at a community college can lead
to increased job opportunities, financial independence,
and ability to contribute to the economy. In addition, as
explained by Camarena and Sarigiani (2009), “For many
talented youth with ASD, their intellectual capabilities
may become a critically important domain essential to
their feelings of self-worth…[and] self-esteem” (p. 115).
Therefore, as more and more students who are diagnosed
with ASD graduate from high school, there is a growing
urgency to better understand how to prepare these stu-
dents for the transition to post-secondary education, and
what services are needed at the postsecondary level to
best support these students.
Transition to Community College
Research thus far indicates that community college
is often a preferred post-secondary option for students
with disabilities, including ASD. According to the United