Cambridge Quarterly of Healthcare Ethics (2013), 22, 408–419.
© Cambridge University Press 2013.
doi:10.1017/S0963180113000315 408
Responses and Dialogue
Normative Theorizing about Genetics
COLIN FARRELLY
A response to “On the Very Idea of Genetic Justice: Why Farrelly’s
Pluralistic Prioritarianism Cannot Tackle Genetic Complexity”
by Michele Loi ( CQ 21(1))
In a recent article in this journal
1
Michele
Loi reaches the conclusion that we ought
to abandon “the very idea that regulating
access to genomics involves an account
of genetic justice, that is, an account of
what would constitute a fair distribu-
tion of genetic endowments, describable
as a distinct ideal, independent from the
social bases of inequality.”
2
This is a
conclusion to which I am actually, at
least partially, sympathetic. And this
may seem surprising given that it is
my work on genetic justice that is the
main target of criticism in Loi’s article.
3
Indeed, Loi takes his conclusion to be
a position contrary to my own conclu-
sions on these issues.
I am certainly in agreement with the
suggestion that genetic justice ought not
to be treated as a distinct ideal, independent
of considerations of the broader demands
of social justice. In fact, something like
that conclusion is the very conclusion
I have argued for in my own work.
The lax genetic difference principle
(lax GDP),
4
for example, maintains that
genetic inequalities (important to the
natural primary goods [NPGs]) are to be
arranged so that they are to the greatest
reasonable benefit of the least advan-
taged. The insertion of the reasonable-
ness clause was an explicit attempt to
ensure that the aspiration to mitigate
genetic disadvantage was cognizant of
other kinds of disadvantage (e.g., social
disadvantage) and values (e.g., freedom)
that fall under the purview of social
justice. Rather than serially ordering a
principle of justice (genetic or otherwise),
like John Rawls
5
does with his equal
basic liberties principle and Norman
Daniels
6
does with a principle of access
to healthcare (by adding healthcare to
Rawls’s principle of fair equality of
opportunity), the lax GDP is a principle
designed to bring the complexities of
trade-offs to the fore of our delibera-
tions rather than simply bracketing them.
And the central aspiration behind the
development of the lax GDP was the
desire to expand the frontiers of justice
to include the distribution of our genetic
potentials for valued phenotypes, like
health and intelligence.
Loi takes issue with what he calls the
“particularistic” aspect of my pluralistic
prioritarianism, the view that I adopt
for developing an account of genetic
justice. My view is particularistic, claims
Loi, in that it involves the weighing of
different claims of justice (e.g., the duty
to mitigate disease caused by genetics
vs. the duty to mitigate disease caused by
environment). Loi contrasts this particu-
laristic pluralistic prioritarian approach
with “monism,” a view he ascribes to
Richard Arneson, which maintains that
well-being is the currency of justice “in
the sense that the moral weight of remov-
ing genetic or environmental forms of
deprivation is established by convert-
ing all the relevant factors into a unified