Improving health behaviours of Latina mothers
of youths and adults with intellectual and
developmental disabilities
S. Magaña,
1
H. Li,
1
E. Miranda
2
& R. Paradiso de Sayu
2
1 University of Illinois at Chicago, Chicago, IL, USA
2 University of Wisconsin-Madison, Madison, WI, USA
Abstract
Background Latina mothers who care for children
with intellectual and developmental disabilities
(IDD) over the lifespan struggle to take care of their
own health needs in the context of their caregiving
experience. Services are typically aimed at the
persons with IDD and not their family caregivers.
Yet, attending to family caregiver needs may con-
tribute to better long-term care of persons with
IDD who remain at home. To address this unmet
need, we developed a culturally sensitive health
education intervention for Latina mothers who care
for youth and adults with IDD. The aim of the
intervention is to improve maternal health-related
self-efficacy and health behaviours, and to reduce
stress.
Method A randomised control design was
employed to determine preliminary efficacy of the
intervention. Paired sample t-tests were conducted
to examine within-group changes from baseline to
-month post-test. Repeated-measures analysis of
covariance was used to examine the group-by-time
interaction effects.
Results Intervention participants showed greater
increases between pre- and post-test in health-
related self-efficacy; self-care, nutrition and overall
health behaviours. Both groups reported decreases
in depressive symptoms and caregiver burden.
Conclusions While additional research is needed to
determine long-term effects and to replicate find-
ings, our results suggest that this culturally sensitive
health intervention is a promising way to increase
health behaviours which may lead to overall good
health for Latina mothers who care for children
with IDD across the lifespan.
Keywords health education, intellectual and
developmental disability, Latinos, promotoras,
self-efficacy
Introduction
In this paper we examined the efficacy of a cultur-
ally sensitive health education intervention for
Latina mothers of youths and adults with intellec-
tual and developmental disabilities (IDD).
Researchers who study caregiver outcomes among
Latina mothers of children and adults with IDD
have found that while these mothers may experience
high levels of social support and quality of life
Correspondence: Prof. Sandy Magaña, Disability and Human
Development, University of Illinois at Chicago, Chicago, IL
, USA (e-mail: maganas@uic.edu).
Journal of Intellectual Disability Research doi: 10.1111/jir.12139
pp –
397
© MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and
John Wiley & Sons Ltd