Journal of Health Psychology
1–11
© The Author(s) 2015
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DOI: 10.1177/1359105315581515
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Background
Within the last decade, more attention is being
paid to the psychosocial (i.e. psychological and
social) aspects of the cancer experience of ado-
lescent and young adults (AYAs) 15–39 year of
age, not only assessing AYA mental health out-
comes (e.g. Tai et al., 2012), but also identify-
ing AYA support needs (e.g. Goldfarb and
Casillas, 2014; Kent et al., 2013). More than
50 percent of AYAs report their needs go unmet
for nearly every one of their needs, including a
desire for more information about the cancer
itself and related health issues (e.g. infertility,
nutrition), as well as counseling support (e.g.
mental health, sexuality, and intimacy) and
family services, including adoption and child
care (Goldfarb and Casillas, 2014; Zebrack,
2009; Zebrack et al., 2014). Unmet needs have
been linked to distress for AYAs post-diagnosis
(Zebrack et al., 2014), thus underscoring the
importance of delivering AYAs appropriate and
effective support.
Understanding how adolescents
and young adults with cancer talk
about needs in online and
face-to-face support groups
Charee M Thompson
1
, Brittani Crook
2
, Brad Love
2
,
Catherine Fiona Macpherson
3
and Rebecca Johnson
4
Abstract
We compared adolescent and young adult cancer patient and survivor language between mediated and
face-to-face support communities in order to understand how the use of certain words frame conversations
about family, friends, health, work, achievement, and leisure. We analyzed transcripts from an online
discussion board (N = 360) and face-to-face support group (N = 569) for adolescent and young adults using
Linguistic Inquiry and Word Count, a word-based computerized text analysis software that counts the
frequency of words and word stems. There were significant differences between the online and face-to-face
support groups in terms of content (e.g. friends, health) and style words (e.g. verb tense, negative emotion,
and cognitive process).
Keywords
adolescents, cancer, Internet, social support, verbal communication
1
Ohio University, USA
2
The University of Texas at Austin, USA
3
Children’s Hospital Los Angeles, USA
4
Mary Bridge Hospital/Multicare, USA
Corresponding author:
Charee M Thompson, School of Communication Studies,
Ohio University, 43 West Union, Athens, OH 45701, USA.
Email: thompsc3@ohio.edu
581515HPQ 0 0 10.1177/1359105315581515Journal of Health PsychologyThompson et al.
research-article 2015
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