Women’s Experiences, Emotional Responses,
and Perceptions of Care After Emergency
Peripartum Hysterectomy: A Qualitative
Survey of Women from 6 Months to 3 Years
Postpartum
Cara Z. de la Cruz, PhD, Martha L. Coulter, DrPH, Kathleen O’Rourke, PhD,
P. Amina Alio, PhD, Ellen M. Daley, PhD, and Charles S. Mahan, MD
ABSTRACT: Background: Little is known of the experience and perceptions of care for
survivors of emergency peripartum hysterectomy (EPH), an obstetric event that is increasing
in incidence. We sought to explore women’s experiences of EPH to make recommendations
for care. Methods: This qualitative study utilized purposive sampling through an online
support group of women who experienced EPH. Eligible participants were at least 18 years
old, had their hysterectomy at least 6 months but no more than 3 years before the interview,
had a surviving infant associated with the delivery, and did not report suicidal ideation. In-
depth, semi-structured telephone interviews were conducted and analyzed using Constant
Comparative Analysis. Kappa statistics assessed interrater reliability for two independent
coders. Results: Fifteen women participated with a mean age of 32.5 years. Most had a
cesarean section, with uterine atony as the most common indication for EPH. Kappa
statistics indicated near-perfect interrater agreement between two coders, ranging from .82
to .89. Seven major themes were identified: fear; pain; death and dying; numbness or delay
in emotional reaction; bonding with baby; communication; and the need for information.
Psychological upset occurred postpartum and was often delayed. A major finding is the need
for additional follow-up visits to address the emotional after-effects and to fill in gaps in
women’s understanding and memory of what had occurred. Conclusion: Understanding
women’s experiences with EPH can help practitioners address not only women’s initial
complications but provide needed long-term support. (BIRTH 40:4 December 2013)
Key words: emergency peripartum hysterectomy, maternal morbidity, perceptions of care,
traumatic childbirth
Cara Z. de la Cruz is a Research Associate in the Department of
Community and Family Health, College of Public Health, University
of South Florida, Tampa, FL, USA; Martha L. Coulter is a Professor
in the Department of Community and Family Health, College of Pub-
lic Health, University of South Florida, Tampa, FL, USA; Kathleen
O’Rourke is a Professor in the Department of Epidemiology and Bio-
statistics, College of Public Health, University of South Florida,
Tampa, FL, USA; P. Amina Alio is an Assistant Professor in Commu-
nity and Preventive Medicine, University of Rochester Medical Cen-
ter, Rochester, NY, USA; Ellen M. Daley is an Associate Professor in
the Department of Community and Family Health, College of Public
Health, University of South Florida, Tampa, FL, USA; Charles S.
Mahan is Professor Emeritus in the Department of Community and
Family Health, College of Public Health, University of South Florida,
Tampa, FL, USA.
Address Correspondence to Cara Z. de la Cruz, PhD, Department of
Community and Family Health, College of Public Health, University
of South Florida, 13201 Bruce B. Downs Blvd. MDC 56, Tampa, FL
33612, USA.
Accepted September 18, 2013
© 2013, Copyright the Authors
Journal compilation © 2013, Wiley Periodicals, Inc.
256
BIRTH 40:4 December 2013