Nouri et al. Reproductive Biology and Endocrinology 2010, 8:85
http://www.rbej.com/content/8/1/85
Open Access RESEARCH
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Research
Family incidence of endometriosis in first-, second-,
and third-degree relatives: case-control study
Kazem Nouri*
1
, Johannes Ott
1
, Birgitt Krupitz
2
, Johannes C Huber
1
and Rene Wenzl
3
Abstract
Background: Initial publications examining the hereditary aspects of endometriosis appeared in the early seventies
and demonstrated an up to seven-fold risk for endometriosis in first-degree relatives of endometriosis patients. The aim
was to evaluate the influence of hereditary aspects on the endometriosis risk in our patient collective.
Methods: In a retrospective cohort study we evaluated the incidence of endometriosis among first-, second-, and
third-degree relatives of endometriosis patients and compare it with its incidence among first-, second-, and third-
degree relatives of patients without endometriosis.
Result(s): Eighty patients in whom endometriosis had been confirmed laparoscopically and histologically by biopsy
and 60 patients in whom no endometriosis had been found during laparoscopy were given a questionnaire about the
presence of symptoms associated with endometriosis and its family incidence. Patients of both the endometriosis and
the control group were 37.7 ± 6.2 and 45.9 ± 12.0 years of age at the time of the interview, respectively (p < 0.05).
Information about the presence of endometriosis was more readily available for relatives of those in the endometriosis
group than for those in the control group (325/749 [43.4%] vs. 239/425 [56.2%], p < 0.05). In 5/136 (3.7%) and 8/134
(6.0%) first-degree relatives of endometriosis patients and the control group, respectively, information about the
presence of endometriosis was not available (p = 0.554). Endometriosis was found in 8/136 (5.9%) first-degree relatives
of patients and in 4/134 (3.0%) first-degree relatives of controls in the real-case analysis (p = 0.248). When comparing
endometriosis characteristics between endometriosis patients with and without a history of familial endometriosis, no
significant differences were found.
Conclusion(s): There is a trend toward an increased familial incidence of endometriosis. In contrast to the literature, we
found a less dramatic increase in familial risk for the development of endometriosis.
Background
Endometriosis is one of the most common gynecological
diseases, and occurs in 2-10% of women of reproductive
age [1]. Symptoms include severe pelvic pain, dysmenor-
rhoea, bladder and bowel discomfort, and infertility. To
date, very little is known about its etiology and pathogen-
esis. Because a number of studies have demonstrated an
increased risk for developing the disease in mothers and/
or sisters of patients, endometriosis likely has a genetic
basis [2-6].
Initial publications examining the hereditary aspects of
endometriosis appeared in the early seventies [3]. In
1981, Simpson et al. were able to demonstrate that the
risk for endometriosis in first-degree relatives of endo-
metriosis patients is seven-fold compared to the normal
population [4]. Five years later, only a four-fold increased
risk for developing the disease was estimated for mothers
and sisters of an endometriosis patient. [5]. A study con-
ducted in twins demonstrated that the incidence of endo-
metriosis in monozygotic twins was twice that in
dizygotic twins [6]. In addition, it has been shown that
the severity of endometriosis is higher among patients
with a positive family history [7]. Accordingly, one could
conclude that if a woman has endometriosis, the risk that
her first-degree relatives will also have endometriosis
could be anywhere from 4-7 times higher than that of the
general population [4,5].
For practical reasons, only a few studies have dealt with
the endometriosis incidence in second- and third-degree
relatives of endometriosis patients [8]. The purpose of
* Correspondence: kazem.nouri@meduniwien.ac.at
1
Department of Gynecologic Endocrinology and Reproductive Medicine,
Medical University of Vienna, Vienna, Austria
Full list of author information is available at the end of the article