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DOI: 10.1177/1363459315628044
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ILLNESS IS WORK:
Revisiting the concept of
illness careers and recognizing
the identity work of patients
with ME/CFS
Jan Grue
University of Oslo, Norway
Abstract
The concept of careers has an extensive history in the sociology of health and illness.
Among other things, the notion of a career has been used to describe the changing
identities of patients diagnosed with mental illness, to identify distinct stages in the
progression of various illnesses, and to recognize the cooperative efforts of hospitalized
patients. However, the career concept may be reanalyzed as part of an analytical
metaphor that makes salient both the agency of people with illnesses and the social
structures in which they are enmeshed. This metaphor, ILLNESS IS WORK, can valorize
and aid understanding of the identity work and actions of patients with chronic illnesses,
particularly illnesses with a low degree of social recognition and medical prestige such
as myalgic encephalopathy and chronic fatigue syndrome.
Keywords
chronic illness, disease prestige, identity, illness career, metaphor theory, myalgic
encephalopathy and chronic fatigue syndrome
Illness careers in the sociology of health and illness
The concept of careers definitively entered the sociology of health and illness in 1961,
through Erving Goffman’s Asylums. According to the Oxford English Dictionary, there
are two main meanings of the term career, one of goal-directed and one of neutral pro-
gression through time: of an occupation with opportunities for progress or the time spent
Corresponding author:
Jan Grue, University of Oslo, P.O. Box 1096 Blindern, 0371 Oslo, Norway.
Email: jangrue@gmail.com
628044HEA 0 0 10.1177/1363459315628044HealthGrue
research-article 2016
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