RESEARCH ARTICLE
Everyday Life with Rheumatoid Arthritis and
Implications for Patient Education and Clinical Practice:
A Focus Group Study
Tine Mechlenborg Kristiansen
1
*
MPSC, Jette Primdahl
2
RN, MHH, PhD,
Rasmus Antoft
3
MPSC, PhD & Kim Hørslev-Petersen
4
MD, DMSci
1
King Christian X Hospital for Rheumatic Diseases, Graasten, Denmark and Faculty of Health Sciences, University of Southern Denmark,
Denmark
2
King Christian X Hospital for Rheumatic Diseases, Graasten, Denmark
3
Department of Sociology and Social Work, Aalborg University
4
Faculty of Health Sciences, University of Southern Denmark and King Christian X Hospital for Rheumatic Diseases, Graasten, Denmark
Abstract
Objectives. This study aimed to explore how everyday life is affected by rheumatoid arthritis (RA), in order to
inform patient education and clinical practice and generate further research.
Methods. Six focus group interviews were conducted with, in total, 32 participants. Interview data were analysed
using content analysis methods.
Results. The study showed that RA affected almost every aspect of participants’ everyday lives, particularly self-
identity, social relationships, work and relationships with health and social care professionals. A small number of
the participants did not have these experiences, due to receiving fast diagnosis and effective medical treatment.
Conclusion. The findings point to a need to increase knowledge about RA, support symptom management and
reduce the physical, social and psychological challenges posed by RA in everyday life. An individualized and engaged
approach to patient education, taking the individual experiences as the point of departure, is suggested. The results
indicate directions for further research. The general implications for patient education that emerge from this study
might not address the support needs of those who did not experience significant changes in everyday life. A more
detailed and in-depth understanding about living with RA in the first years after diagnosis would provide a valuable
supplement to the many retrospective studies, and useful knowledge in the design of patient education tailored to
those who are newly diagnosed with RA. Copyright © 2011 John Wiley & Sons, Ltd.
Keywords
Patient education; everyday life; focus group method
*Correspondence
Tine Mechlenborg Kristiansen, Institut for Regional Sundhedsforskning, Sygehus Sønderjylland, King Christian X’s Gigthospital, Toldbodgade 3,
6300 Gråsten, Denmark. Tel: +45 2327 5110
Email: tmkristiansen@gigtforeningen.dk
Published online 26 December 2011 in Wiley Online Library (wileyonlinelibrary.com) DOI: 10.1002/msc.224
Introduction
Background
Rheumatoid arthritis (RA) is a fluctuating, chronic
autoimmune disease associated with pain, fatigue, joint
stiffness and joint destruction that eventually leads to
functional disability.
Within recent years, both sociological and clinical
international research have focused on RA as it is
experienced by the individual living with this
29 Musculoskelet. Care 10 (2012) 29–38 © 2011 John Wiley & Sons, Ltd.