Paternal UPD15: Further Genetic and Clinical Studies
in Four Angelman Syndrome Patients
Cintia Fridman,
1
* Monica C. Varela,
1
Fernando Kok,
2
Aron Diament,
2
and Ce ´ lia P. Koiffmann
1
1
Department of Biology, Institute of Bioscience, University of Sa ˜ o Paulo, Sa ˜ o Paulo, Brazil
2
Child Neurology Service, Department of Neurology, Hospital das Clı ´nicas, University of Sa ˜ o Paulo, School of
Medicine, Sa ˜ o Paulo, Brazil
Among 25 patients diagnosed with Angel-
man syndrome, we detected 21 with deletion
and 4 with paternal uniparental disomy
(UPD), 2 isodisomies originating by postzy-
gotic error, and 1 MII nondisjunction event.
The diagnosis was obtained by molecular
techniques, including methylation pattern
analysis of exon 1 of SNRPN and microsat-
ellite analysis of loci within and outside the
15q11-q13 region. Most manifestations pres-
ent in deletion patients are those previously
reported. Comparing the clinical data from
our and published UPD patients with those
with deletions we observed the following:
the age of diagnosis is higher in UPD group
(average 7
3
/12 years), microcephaly is more
frequent among deletion patients, UPD chil-
dren start walking earlier (average age 2
9
/12
years), whereas in deletion patients the av-
erage is 4
1
/2 years, epilepsy started later in
UPD patients (average 5
10
/12 years) than in
deletion patients (average 1
11
/ 12 years),
weight above the 75th centile is reported
mainly in UPD patients, complete absence
of speech is more common in the deleted
(88.9%) than in the UPD patients because
half of the children are able to say few
words. Thus, besides the abnormalities al-
ready described, the UPD patients have
somewhat better verbal development, a
weight above the 75th centile, and OFC in
the upper normal range. Am. J. Med. Genet.
92:322–327, 2000. © 2000 Wiley-Liss, Inc.
KEY WORDS: Angelman syndrome; 15q de-
letion; uniparental disomy;
genomic imprinting; meiosis
II nondisjunction
INTRODUCTION
Angelman syndrome (AS) [Angelman, 1965] com-
prises hypotonia (90%), severe mental retardation
(100%), absent speech (98%), seizures (80%), ataxia
(100%), outbursts of laughter, micro and/or brachy-
cephaly (90%), macrostomia (75%), and prognathism
(95%). The gait is described as wide-based with arms
held flexed and upheld at the elbows [Clayton-Smith
and Pembrey, 1992; Fryburg et al., 1991; Robb et al.,
1989].
The Prader-Willi (PWS) (hypotonia, obesity, and hy-
perphagia) and Angelman syndromes are clear ex-
amples of genomic imprinting in humans because the
clinical manifestation of these syndromes depends on
the sex of the parent-of-origin of mutations within the
15q11-q13 region. The genetic basis of AS is complex,
and at present, it is unknown whether the syndrome is
caused by the loss of function of a single gene or wheth-
er different genes are involved [Bu ¨ rger et al., 1997].
About two thirds of the AS cases are due to maternal
deletion within 15q11-q13 [Magenis et al., 1987; Knoll
et al., 1989]; paternal uniparental disomy of chromo-
some 15 (UPD15) is detected in 2–3% [Nicholls, 1993];
approximately 2% of individuals show imprinting con-
trol center mutations identified by abnormal methyl-
ation pattern [Buiting et al., 1995, 1998; Glenn et al.,
1997; Saitoh et al., 1996; Sutcliffe et al., 1994]; about
8% show mutations in the UBE3A gene [Kishino et al.,
1997; Malzac et al., 1998; Matsuura et al., 1997], and
there is a class of AS patients with undetected genetic
mechanism. Recurrence risk in deletion and UPD cases
is less than 1% and for familial imprinting mutation
and UBE3A mutation may be 50% [Burger et al., 1997;
Saitoh et al., 1997].
In general, AS is not suspected during the first year
of life, but it is better recognized around 3–4 years of
age. Some characteristics, such as seizures, outbursts
of laughter, macrostomia, prognathism, and wide-
based gait, become more evident after age 2 years;
asymmetrical face and scoliosis can occur only at pu-
berty [Buntinx et al., 1995]. An electroencephalogram
(EEG) study can be useful for diagnosis if some of the
AS characteristics are present; nevertheless, some of
those manifestations are age-dependent and can disap-
pear in older children [Clayton-Smith, 1992].
Grant Sponsor: Department of Energy; Grant Numbers: DOE-
FG03-92 ER601402; DOE-FC03-96 ER62294.
*Correspondence to: C. Fridman, Departamento de Biologia,
Instituto de Biocie ˇncias, USP, Caixa Postal 11.461, CEP: 05422-
970, Sa ˜ o Paulo, SP, Brazil. E-mail: cfridman@ib.usp.br
Received 20 October 1999; Accepted 22 February 2000
American Journal of Medical Genetics 92:322–327 (2000)
© 2000 Wiley-Liss, Inc.