ORIGINAL RESEARCH: EMPIRICAL RESEARCH –
QUANTITATIVE
The association between positive–negative reactions of informal
caregivers of people with dementia and health outcomes in eight
European countries: a cross-sectional study
M. Carme Alvira*, Ester Risco*, Esther Cabrera, Marta Farr e, Ingalill Rahm Hallberg, Michael H.C.
Bleijlevens, Gabriele Meyer, Jaana Koskenniemi, Maria E. Soto & Adelaida Zabalegui on behalf of
the RightTimePlaceCare Consortium
†
Accepted for publication 23 August 2014
Correspondence to A. Zabalegui:
e-mail: azabaleg@clinic.ub.es
*Equal contribution to this work.
†
The RightTimePlaceCare Consortium is
disclosed in Appendix 1.
M. Carme Alvira MScN RN
Registered Nurse
CAP Comte Borrell, Barcelona, Spain
Ester Risco MSc RN
Nurse Research Support
Hospital Clinic de Barcelona, Spain
Esther Cabrera PhD RN
School of Health Sciences Director,
University Pompeu Fabra, School
TecnoCampus Matar o, Spain
Marta Farr e MSc RN
Registered Nurse
Department of Internal Medicine, Hospital
Cl ınic de Barcelona, Spain
Ingalill Rahm Hallberg PhD RN
Senior Professor
Department of Health Sciences, Lund
University, Sweden
ALVIRA M.C., RISCO E., CABRERA E., FARR
E M., HALLBERG I.R., BLEIJLE-
VENS M.H.C., MEYER G., KOSKENNIEMI J., SOTO M. & ZABALEGUI A., ON
BEHALF OF THE RIGHTTIMEPLACECARE CONSORTIUM (2014) The associa-
tion between positive–negative reactions of informal caregivers of people with
dementia and health outcomes in eight European countries: a cross-sectional
study. Journal of Advanced Nursing 00(0), 000–000. doi: 10.1111/jan.12528
Abstract
Aim. To describe the associations between positive and negative reactions of
informal caregivers of people with dementia and health outcomes across eight
European Countries.
Background. Caring for someone with dementia may have implications for the
caregiver’s own health and for the care recipient. These consequences could be
associated with caregivers’ reactions to the process of care.
Design. Association study based on cross-sectional data.
Methods. Participants were people with dementia and their informal caregivers
living at home or in long-term care institutions. Data were collected between
November 2010–April 2012 using the Caregiver Reaction Assessment (with
dimensions of self-esteem, lack of family support, financial problems, disrupted
schedule and health problems) and associations were sought with informal
caregiver burden, quality of life and psychological well-being and with dementia
sufferers’ neuropsychiatric symptoms, comorbidity and dependency in activities of
daily living using correlation coefficients.
Results. Data from 2014 participants were used. Variability across countries was
noted, as well as differences between care at home and in long-term care
institutions. In general, self-esteem and lack of family support correlated with
caregiver burden and psychological well-being. Associations were also found
between disrupted schedule and caregiver burden, psychological well-being and
quality of life. Health problems were clearly associated with caregiver burden,
psychological well-being and quality of life.
© 2014 John Wiley & Sons Ltd 1
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