Determinants of Quality of Care for Adolescents
and Young Adults With Chronic Illnesses: A Mixed
Methods Study
Nabeel Al-Yateem PhD
a,
⁎
, Charles Docherty PhD
a
,
Rachel Rossiter RN. M.Nursing (NP), HScD
b
a
Department of Nursing, College of Health Sciences, University of Sharjah, Sharjah, United Arab Emirates
b
Visiting academic, University of Sharjah, UAE, Faculty of Science, Charles Sturt University, Australia
Received 8 October 2015; revised 12 December 2015; accepted 12 December 2015
Key words:
Adolescent health care;
Adolescence;
Determinants of quality;
Mixed methods research;
Qualitative research;
Quantitative research;
Questionnaire;
Statistical survey
Background Measuring the quality of service and user experience is an acknowledged priority for
healthcare services; however it seems that healthcare systems have to work very hard to achieve this
goal as evidenced by reports of gaps and disparities in the quality of care provided to clients, especially
within pediatric and adolescent populations.
Objectives: To identify quality determinants for healthcare services for adolescents and young adults
with chronic conditions based on the perceptions and the experiences of adolescents and young adults
themselves.
Methodology: A sequential exploratory mixed method design guided this study. The initial qualitative
phase employed semi-structured in-depth interviews to elicit the elements and determinants of quality of
care as identified by adolescents and young adults living with chronic conditions. The second phase
employed a questionnaire developed from the data gathered during the qualitative phase to survey the
target population. This was distributed to a larger sample of adolescents and young adults with chronic
conditions to determine and confirm the relevance of the identified care elements and quality
determinants.
Results: The study revealed 4 main determinants: the provision of adolescent friendly information
relating to all aspects of living with chronic conditions, services that facilitate and encourage
independence, services characterized by structure with the capacity to be both dynamic and responsive,
and finally health care professionals knowledgeable and skilled in relation to adolescent specific issues.
© 2016 Elsevier Inc. All rights reserved.
Background
Measuring the quality of service and user experience is a
priority for all industries worldwide. Healthcare services
deliver care designed to promote the health and well-being of
individuals, many of whom are weak and vulnerable and
some who are critically ill and in need of effective and
immediate assistance in order to survive. Ensuring quality
healthcare services has been mandated globally for many
years (Macias, 2013; Office of Disease Prevention and
Health Promotion, 2015; Smith, Saunders, Stuckhardt, &
McGinnis, 2013). It seems that healthcare systems struggle
to achieve this goal. An extensive literature describes gaps
and disparities in the quality of care provided to clients,
including the care offered to vulnerable pediatric and
adolescent populations (Annunziato et al., 2013; Bamford et
al., 2001; Beacham & Deatrick, 2015; Berdahl et al., 2010; Betz,
⁎
Corresponding author: Nabeel Al-Yateem, PhD.
E-mail address: Nalyateem@sharjah.ac.ae.
http://dx.doi.org/10.1016/j.pedn.2015.12.003
0882-5963/© 2016 Elsevier Inc. All rights reserved.
Journal of Pediatric Nursing (2016) 31, 255–266