International Ophthalmology 22: 307–312, 1998.
© 2000 Kluwer Academic Publishers. Printed in the Netherlands.
307
Patient perceptions of quality-of-life associated with bilateral visual loss
Gary C. Brown
1
, Melissa M. Brown
2
, Sanjay Sharma
3
& Heidi C. Brown
1
1
Retina Vascular Unit,
2
Cataract and Primary Eye Care Service, Wills Eye Hospital, Philadelphia PA, USA;
3
Retina Service and Department of Epidemiology Health Policy Research Unit, Queens University, Kingston,
Ontario, Canada
Accepted 30 December 1999
Key words: utility analysis, bilateral visual loss
Abstract
Purpose: To ascertain whether patients with unilateral visual loss to a specific level are able to approximate the
degree of impairment of quality-of-life experienced by patients with bilateral visual loss to the same level. Methods:
One hundred thirty-three study group patients with (1) visual loss to 20/40 or worse in at least one eye, and (2)
a marked difference between the visual acuities in their two eyes, were polled using the time tradeoff method of
utility value measurement. All patients were asked to assume that the visual acuity in both of their eyes was as
poor as the visual acuity in their worst seeing eye. These utility values were then compared to those obtained from
a control group of 173 patients with known utility values who had similar bilateral visual loss. Both the study
and control groups were stratified into 4 levels of visual loss (20/40 to 20/50, 20/60 to 20/100, 20/200 to 20/400,
and counting fingers to light perception). Results: Mean utility values for the study group ranged from 0.47 to
0.71. Patients with unilateral visual loss, given the assumption of bilateral visual loss to the same degree, routinely
demonstrated no significant difference in utility preferences as compared to patients with true bilateral visual loss
to the same level. Conclusions: Patients with unilateral visual loss can very accurately estimate the degree of
impairment of quality-of-life that would result if visual loss to a similar degree occurred in the remaining eye with
better vision.
Utility theory was developed in the 1940’s to allow
quantification of uncertainty [1]. By the 1970’s, re-
searchers began to apply utility theory to health care
[2]. Utility analysis allows an objective evaluation of
the quality-of-life associated with a health (disease)
state [3–5].
By convention, a utility value of 1.0 correlates with
a perfect health state, while a utility value of 0.0 cor-
relates with death [3–5]. The higher the utility value,
the better the quality-of-life. As examples, mild angina
has been associated with a utility value of 0.90, while
severe angina has been associated with a utility value
of 0.50 [5].
It has been shown that utility values in ophthalmo-
logy decrease in direct proportion to the level of visual
loss, particularly with the level of visual loss in the
better seeing eye [6, 7]. It has also been demonstrated
that the utility estimates of ophthalmologists for spe-
cific levels of bilateral visual loss are vastly different
than those of patients who have experienced the visual
loss firsthand [8]. Other publications have shown as
well that the perceptions of patients and physicians can
dramatically differ in regard to the disability induced
by a disease entity [9–11].
The authors herein undertook a study of patients
with vastly different levels of vision in each eye using
utility analysis. Each patient was asked to assume that
the vision in his or her better eye was the same as the
vision as in the poorer eye, and was then evaluated
using the time tradeoff method of utility measurement.
These estimates of utility values were compared to
those of patients who had visual loss in both eyes
to the same degree that the study patients had in the
worst eye. The intent was to ascertain whether patients
with unilateral visual loss can accurately estimate the
degree of impairment in performing the activities of