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Homozygosity (E140K) in SCO2 causes
delayed infantile onset of cardiomyopathy
and neuropathy
M. Jaksch, MD; R. Horvath, MD; N. Horn, PhD; D.P. Auer, MD; C. Macmillan, MD; J. Peters, MD;
K.–D. Gerbitz, MD; I. Kraegeloh–Mann, MD; A. Muntau, MD; V. Karcagi, PhD; R. Kalmanchey, MD;
H. Lochmuller, MD; E.A. Shoubridge, PhD; and P. Freisinger, MD
Article abstract—Objective: To report three unrelated infants with a distinctive phenotype of Leigh-like syndrome,
neurogenic muscular atrophy, and hypertrophic obstructive cardiomyopathy. The patients all had a homozygous missense
mutation in SCO2. Background: SCO2 encodes a mitochondrial inner membrane protein, thought to function as a copper
transporter to cytochrome c oxidase (COX), the terminal enzyme of the respiratory chain. Mutations in SCO2 have been
described in patients with severe COX deficiency and early onset fatal infantile hypertrophic cardioencephalomyopathy.
All patients so far reported are compound heterozygotes for a missense mutation (E140K) near the predicted CxxxC metal
binding motif; however, recent functional studies of the homologous mutation in yeast failed to demonstrate an effect on
respiration. Methods: Here we present clinical, biochemical, morphologic, functional, MRI, and MRS data in two infants,
and a short report in an additional patient, all carrying a homozygous G1541A transition (E140K). Results: The disease
onset and symptoms differed significantly from those in compound heterozygotes. MRI and muscle morphology demon-
strated an age-dependent progression of disease with predominant involvement of white matter, late appearance of basal
ganglia lesions, and neurogenic muscular atrophy in addition to the relatively late onset of hypertrophic cardiomyopathy.
The copper uptake of cultured fibroblasts was significantly increased. Conclusions: The clinical spectrum of SCO2
deficiency includes the delayed development of hypertrophic obstructive cardiomyopathy and severe neurogenic muscular
atrophy. There is increased copper uptake in patients’ fibroblasts indicating that the G1541A mutation effects cellular
copper metabolism.
NEUROLOGY 2001;57:1440 –1446
Cytochrome c oxidase (COX) deficiency is found in
patients with different clinical phenotypes primarily
affecting organs with high energy demand such as
the brain, skeletal muscle, heart, and kidney.
1
Pedi-
gree studies suggest an autosomal recessive inheri-
tance in most cases; however, mutations in nuclear
genes coding for the COX subunits themselves have
not been reported.
2,3
Several nuclear genes are
known from yeast studies to be essential factors for
assembly and maintenance of the COX complex.
4
The
human homologues of four such assembly genes—
SURF1,
5,6
SCO2,
7-9
COX10,
10
and SCO1
11
— have now
been identified in human COX deficiency disorders.
SURF1 was found to be mutated in a series of pa-
tients with typical Leigh syndrome and COX
deficiency.
12
Mutations in SCO2 have so far been described in
six infants with a fatal disorder with hypertrophic
From the Metabolic Disease Centre Munich (Drs. Jaksch, Horvath, Peters, Gerbitz, and Freisinger) and Institute of Clinical Chemistry, Molecular
Diagnostics and Mitochondrial Genetics (Drs. Jaksch, Horvath, and Gerbitz), Munich; Childrens Hospital of the Technical University (Drs. Peters and
Freisinger), Munich; Max Planck Institute of Psychiatry (Dr. Auer), Munich; Childrens Hospital of the Ludwig Maximilians University (Dr. Muntau),
Munich; Genzentrum and Friedrich-Baur-Institut of the Ludwig-Maximilians-University (Dr. Lochmuller), Munich, Germany; The John F. Kennedy
Institute (Dr. Horn), Glostrup, Denmark; Departments of Pediatrics and Neurology (Dr. Macmillan), University of Illinois, Chicago; Dept. of Neuropediatrics,
Children’s Hospital (Dr. Kraegeloh-Mann), University of Tuebingen, Germany; National Institute of Public Health (Dr. Karcagi), Budapest; Department of
Pediatrics II (Dr. Kalmanchy), Semmelweis University, Budapest, Hungary; and Montreal Neurological Institute and Department of Human Genetics (Dr.
Shoubridge), McGill University, Montreal, Quebec, Canada.
Supported by grants from the Deutsche Forschungsgemeinschaft (Ja 802/1-2) (M.J.), the Friedrich-Baur-Stiftung (M.J., H.L.), the Ernst und Berta Grimmke
Stiftung (M.J., R.H.), the CIHR (E.A.S.), and the March of Dimes Birth Defects Association (E.A.S.). E.A.S. is an MNI Killam Scholar.
Received January 29, 2001. Accepted in final form July 4, 2001.
Address correspondence and reprint requests to Dr. M. Jaksch, Metabolic Disease Centre Munich-Schwabing, Koelner Platz 1, 80804 Muenchen, Germany;
e-mail: Michaela.Jaksch@lrz.uni-muenchen.de
1440 Copyright © 2001 by AAN Enterprises, Inc.