AIDS PATIENT CARE and STDs
Volume 20, Number 5, 2006
© Mary Ann Liebert, Inc.
Social Stigma Concerns and HIV Medication Adherence
LANCE S. RINTAMAKI, Ph.D.,
1
TERRY C. DAVIS, Ph.D.,
2
SILVIA SKRIPKAUSKAS, B.A.,
3
CHARLES L. BENNETT, MD.,
1,3
and MICHAEL S. WOLF, Ph.D., M.P.H.
1,3
ABSTRACT
The threat of social stigma may prevent people living with HIV from revealing their status
to others and serve as a barrier to HIV treatment adherence. We evaluated the effect of such
concerns on self-reported treatment adherence using a short, three-item measure among 204
people living with HIV. Overall, the mean age of participants was 40.1 years, 45% were African
American, and 80% were male. People with high HIV stigma concerns were 2.5 times less
likely to define and interpret the meaning of CD4 count correctly and 3.3 times more likely
to be nonadherent to their medication regimen than those with low concerns. Concern over
revealing HIV status was the only statistically significant, independent predictor of adher-
ence in multivariate analysis. Clinical care directed to individuals living with HIV should
therefore include considerations for patient sensitivity to social stigma, such as modifications
to medication schedules and referrals for counseling prior to enrollment in antiretroviral ther-
apies.
359
INTRODUCTION
O
VER THE PAST DECADE, advances in the phar-
maceutical treatment for HIV have greatly
increased the health and lifespan of those liv-
ing with the disease.
1–3
However, in order for
these medications to work effectively, they
must be adhered to with little or no deviation
from prescribed regimens. When taken im-
properly (such as missing or modifying doses),
these medications may subsequently fail to pre-
vent viral replication, which may then lead
to viral resistance.
4,5
Studies have shown
that even minor deviations to the prescribed
medication regimen, such as missing one or
two doses per month, can promote such resis-
tance.
5,6
Moreover, resistant strains of HIV may
be transmitted to others, thus limiting the treat-
ment options available to those newly infected
with these strains.
7
Yet, despite the dangers,
poor treatment adherence is common among
people living with HIV.
8–11
The associations between specific patient
and regimen characteristics with poor HIV
medication adherence often have been de-
scribed in the literature. Characteristics related
to adherence include: regimen complexity, for-
getfulness, desires to avoid medication side
effects, inadequate patient knowledge, fam-
ily/work responsibilities, depression, medica-
tion availability, or a desire to simply have
breaks from the endless routine of taking
pills.
12
Most of these and other identified fac-
tors found to be significantly associated with
1
Midwest Center for Health Services and Policy Research, Veteran Affairs Chicago Healthcare System, Chicago,
Illinois.
2
Louisiana State University Health Sciences Center, Shreveport, Louisiana.
3
Institute for Healthcare Studies, Feinberg School of Medicine at Northwestern University, Chicago, Illinois.