ARTHRITIS & RHEUMATISM
Vol. 42, No. 11, November 1999, pp 2346–2355
© 1999, American College of Rheumatology
CLOSE RELATIONSHIP BETWEEN SYSTEMIC LUPUS
ERYTHEMATOSUS AND THROMBOTIC THROMBOCYTOPENIC
PURPURA IN CHILDHOOD
HERMINE I. BRUNNER, MELVIN FREEDMAN, and EARL D. SILVERMAN
Objective. To determine the association between
childhood-onset thrombotic thrombocytopenic purpura
(TTP) and systemic lupus erythematosus (SLE).
Methods. The charts of all 5 patients diagnosed
with idiopathic TTP at the Hospital for Sick Children
(HSC) in Toronto from 1975 to 1998, and all cases of
childhood-onset TTP (ages 6–20 years) reported in the
literature over the same period were reviewed. Fourteen
of the 44 patients identified in the literature were
excluded from the analysis for lack of clinical and
laboratory information. The remaining 35 patients were
grouped into either an SLE/TTP group or a TTP only
group, according to the presence or absence of the
American College of Rheumatology (ACR) classification
criteria for SLE. The groups were compared for differ-
ences in clinical or laboratory features.
Results. The clinical presentation and initial dis-
ease course of pediatric patients with TTP were similar
to those observed in adults. Of the 35 patients with
childhood-onset TTP included in this review, 9 (26%)
fulfilled >4 ACR criteria for SLE and 8 (23%) were
found to have incipient SLE. Of the 5 patients initially
diagnosed with idiopathic TTP at the HSC, 3 were
diagnosed with SLE within 3 years, and the other 2
patients fulfilled 3 ACR classification criteria for SLE
within 4 years of disease onset. The clinical syndrome of
pediatric TTP presenting with proteinuria, especially
with high-grade proteinuria, was significantly associ-
ated with the development or coexistence of childhood-
onset SLE.
Conclusion. TTP in childhood is a rare, but
life-threatening, disease. Unlike in adults, TTP in child-
hood is commonly associated with SLE. High-grade
proteinuria at diagnosis of TTP is the best predictor for
the presence or subsequent development of SLE.
Thrombotic thrombocytopenic purpura (TTP)
was first described by Moschkowitz in 1924 in a 16-year-
old girl with malaise, upper extremity weakness, fever,
petechiae, anemia, and microscopic hematuria leading
to death (1). Postmortem examination revealed hyaline
thrombi in the terminal arterioles and capillaries of
multiple organs. Despite numerous case reports of TTP
in the literature, this disease is rare and has an estimated
incidence of up to 1 per million (2,3); fewer than 10% of
all cases occur in the pediatric age group (2,4).
TTP is diagnosed based on the presence of the
characteristic clinical pentad: 1) thrombocytopenia and
disseminated platelet aggregation, 2) microangiopathic
hemolytic anemia (Coombs-negative reaction) with frag-
mented erythrocytes, 3) neurologic abnormalities, 4)
fever, and 5) renal disease. The initial prognosis of TTP
was reported to be dismal; 90% of patients died within 3
months of onset. Patients who survived the first episode
were at a significant risk for relapses (60%). In the late
1970s, plasmapheresis was found to be lifesaving, and
today the survival rate is 80–90% (5).
Although Moschkowitz had speculated that the
lesions seen in TTP were disease-specific, we now know
that identical pathologic changes can be seen in combi-
nation with other clinically well-defined diseases or
during pregnancy (5,6). One of the diseases associated
with microangiopathic changes is systemic lupus ery-
thematosus (SLE) (7). A recent review of TTP occurring
in SLE patients (8) demonstrated that 1) in 73% of
cases, SLE was diagnosed before the onset of TTP, 2) in
15% of cases, SLE and TTP were diagnosed concomi-
tantly, and 3) in only 12% of cases, TTP preceded the
diagnosis of SLE. However, the true percentage of
Hermine I. Brunner, MD, Melvin Freedman, MD, FRCPC,
Earl D. Silverman, MD, FRCPC: University of Toronto, Toronto,
Ontario, Canada.
Address reprint requests to Earl D. Silverman, MD, Division
of Rheumatology, The Hospital for Sick Children, 555 University
Avenue, Toronto, ON M5G 1X8, Canada.
Submitted for publication March 24, 1999; accepted in revised
form July 12, 1999.
2346