ORIGINAL ARTICLE
Assessment of psychosocial problems in children with type 1 diabetes
and their families: the added value of using standardised
questionnaires in addition to clinical estimations of nurses and
paediatricians
Emiel A Boogerd, Anouk MA Damhuis, Jani € elle (A)AEM van Alfen-van der Velden,
Marley CCH Steeghs, Cees Noordam, Chris M Verhaak and Ignace PR Vermaes
Aims and objectives. To investigate the assessment of psychosocial problems in
children with type 1 diabetes by means of clinical estimations made by nurses
and paediatricians and by using standardised questionnaires.
Background. Although children with type 1 diabetes and their parents show
increased risk for psychosocial problems, standardised assessment of these prob-
lems lacks in diabetes care.
Design. By comparing these different modes of assessment, using a cross-sectional
design, information about the additional value of using standardised question-
naires is provided.
Methods. Participants were 110 children with type 1 diabetes (aged 4–16), their
parents, and healthcare professionals. Children filled out the Strengths and Diffi-
culties Questionnaire and the Paediatric Quality of Life Inventory, Diabetes Mod-
ule. Parents filled out the Strengths and Difficulties Questionnaire parent-report
and the Parenting Stress Index. Independently, nurses and paediatricians filled out
a short questionnaire, which assessed their clinical estimations of the children’s
psychosocial problems and quality of life, and parents’ levels of parenting stress.
Reports of children and parents were compared to clinical estimations.
Results. Children in our sample showed more psychosocial problems and lower
health-related quality of life than their healthy peers. In approximately half of the
children, dichotomous estimations by healthcare professionals and dichotomised
reports by patients and parents were in agreement. In 10% of the children, no
psychosocial problems were present according to professionals’ estimations,
What does this paper contribute
to the wider global clinical
community?
Children with type 1 diabetes
show more psychosocial prob-
lems than healthy children.
In half of the investigated cases,
standardised questionnaires pro-
vided nurses and paediatricians
with additional information on
patients’ and parents’ psychoso-
cial problems.
Using validated questionnaires in
psychosocial assessment is
expected to be of additional
value in tailoring and allocating
additional care to those patients
and parents who need it most.
Authors: Emiel A Boogerd, MSc, PhD Student, Children’s Dia-
betes Center Nijmegen and Department of Psychology, Rad-
boud university medical center, Nijmegen; Anouk MA
Damhuis, MSc, Junior Clinical Psychologist, Children’s Diabe-
tes Center Nijmegen, Nijmegen, Department of Paediatric Psy-
chology, Tilburg University, Tilburg and Department of
Psychology, Canisius Wilhelmina Hospital, Nijmegen; Jani€ elle
AAEM van Alfen-van der Velden, PhD, Paediatric Endocrinolo-
gist, Children’s Diabetes Center Nijmegen and Department of
Paediatrics, Radboud university medical center, Nijmegen;
Marley CCH Steeghs, MSc, Senior Clinical Psychologist, Chil-
dren’s Diabetes Center Nijmegen and Department of Psychol-
ogy, Canisius Wilhelmina Hospital, Nijmegen; Cees Noordam,
PhD, Professor of Pediatrics, Children’s Diabetes Center Nijme-
gen and Department of Paediatrics, Radboud university medical
center, Nijmegen; Chris M Verhaak, PhD, Assistant Professor
and Senior Clinical Psychologist, Department of Psychology,
Radboud university medical center, Nijmegen; Ignace PR
Vermaes, PhD, Assistant Professor, Department of Paediatric
Psychology, Tilburg University, Tilburg and Behavioural Science
Institute, Radboud University, Nijmegen, The Netherlands
Correspondence: Emiel A Boogerd, PhD Student, Department of
Medical Psychology, Radboud university medical center, PO Box
9101, 6500 HB Nijmegen, The Netherlands. Telephone:
+31 (0) 24 3655232.
E-mail: emiel.boogerd@radboudumc.nl
© 2015 John Wiley & Sons Ltd
Journal of Clinical Nursing, doi: 10.1111/jocn.12789 1