PERSPECTIVES
BJD
British Journal of Dermatology
Shared decision making and patient decision aids in
dermatology
J. Tan,
1
E. Linos,
2
M.A. Sendelweck,
3
E.J. van Zuuren,
4
S. Ersser,
5
R.P. Dellavalle
6
and H. Williams
7
1
Western University, London, ON, Canada
2
Department of Dermatology, University of California, San Francisco School of Medicine, San Francisco, CA, U.S.A.
3
University of Colorado, Aurora, CO, U.S.A.
4
Department of Dermatology, Leiden University Medical Centre, Leiden, the Netherlands
5
School of Healthcare, University of Leeds, Leeds, U.K.
6
Denver Veterans Affairs Medical Center, Denver, CO, U.S.A.
7
Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, U.K.
Correspondence
Jerry Tan.
E-mail: jerrytan@bellnet.ca
Accepted for publication
10 May 2016
Funding sources
None.
Conflicts of interest
J.T. holds the copyright for ‘What can you do to
manage your psoriasis? A decision aid for plaque
psoriasis patients’.
9
DOI 10.1111/bjd.14803
Summary
Shared decision making combines individual patient interests and values with
clinical best evidence under the guiding principle of patient autonomy. Patient
decision aids can support shared decision making and facilitate decisions that
have multiple options with varying outcomes for which patients may attribute
different values. Given the variable psychosocial impact of skin disease on indivi-
duals and relative uncertainty regarding best treatments and their adherence in
many dermatological conditions, informed shared decision making, supported by
patient decision aids, should constitute a central component of dermatological
care.
Patients are experts in their illness – they directly experience
symptoms and psychosocial impact within the context of their
personal circumstances. Healthcare providers are experts in
management of disease and have access to medical informa-
tion and evidence. Shared decision making (SDM) reflects the
importance of these two complementary expert groups, with a
convergence of patient interests and values combined with
clinical expertise and the best evidence around the central
ethic of patient autonomy.
1
Medical innovation develops along a pathway of identifying
clinical need, biomedical research and discovery, critical
appraisal and synthesis, development of clinical practice guide-
lines and implementation into practice.
2
While clinical practice
guidelines arose from the evidence-based medicine movement
and integrate best evidence, they are developed for care provi-
ders, not to assist patients with decision making. Closing this
loop of innovation to a patient requires exploration of an indi-
vidual’s values and preferences. Several studies have found that
a substantial percentage of patients would like to play a more
active role in their healthcare decisions.
3
Patient decision aids (pDAs) are tools to engage patients in
this decision making. They are particularly suited for complex
decisions that have multiple options with varying outcomes,
for which patients may attribute different values. Furthermore,
in clinical situations in which outcome information is limited
or uncertain, the best choice depends on the importance that
the patient places on each of the benefits, harms and scientific
uncertainties.
4
In dermatology, the quality of medical evidence
has improved substantially, but little has been done to incor-
porate SDM. Herein we discuss SDM in dermatology, the
effectiveness of pDAs, and their potential role in dermatology.
Dermatology is a specialty particularly suited to SDM, as the
severity of most dermatological diseases is defined by patients’
experience of symptoms and adverse psychosocial impact.
Patients vary greatly in how they respond to dermatological
diseases, as clinical determinants of severity often do not pre-
dict psychosocial impact. For example, some with severe acne
may be unperturbed while others with few lesions may be
highly distraught. Treatment decisions in dermatology are
therefore particularly guided by personal characteristics, cir-
cumstances and preferences – beyond objective disease sever-
ity. Such decisions are especially important to share with
patients who have a responsibility to self-manage chronic ill-
ness. Accordingly, the majority of treatment decisions in
© 2016 British Association of Dermatologists British Journal of Dermatology (2016) 175, pp1045–1048 1045