Smartphone-Based Public Health Information Systems:
Anonymity, Privacy and Intervention
Andrew Clarke
Discipline of Health Informatics, University of Sydney, Sydney, NSW 2006, Australia. E-mail:
andrew.clarke@sydney.edu.au
Robert Steele
Division of Health Informatics, Medical University of South Carolina, Charleston, SC, 29425, USA. E-mail:
steelerj@musc.edu
The pervasive availability of smartphones and their con-
nected external sensors or wearable devices can
provide a new public health data collection capability.
Current research and commercial efforts have concen-
trated on sensor-based collection of health data for per-
sonal fitness and healthcare feedback purposes.
However, to date there has not been a detailed investi-
gation of how such smartphones and sensors can be
utilized for public health data collection purposes.
Public health data have the characteristic of being cap-
turable while still not infringing upon privacy, as the full
detailed data of individuals are not needed but rather
only anonymized, aggregate, de-identified, and non-
unique data for an individual. For example, rather
than details of physical activity including specific
route, just total caloric burn over a week or month could
be submitted, thereby strongly assisting non-re-
identification. In this paper we introduce, prototype, and
evaluate a new type of public health information system
to provide aggregate population health data capture and
public health intervention capabilities via utilizing smart-
phone and sensor capabilities, while fully maintaining
the anonymity and privacy of each individual. We con-
sider in particular the key aspects of privacy, anonymity,
and intervention capabilities of these emerging systems
and provide a detailed evaluation of anonymity preser-
vation characteristics.
Introduction
The rapid growth in both the capabilities and uptake of
smartphones suitable to act as health sensor platforms has
the potential to advance public health data collection and
intervention in significant ways. Although, increasingly,
research and development is concentrating on how mobile
devices and sensors can be used as a tool for individual health
data capture and feedback, this has not extended into inves-
tigation of how these devices can be used for public health
data capture. Interestingly, the case for public health usage
does not require the same level of precise data that would
often be required in participatory sensing (Burke et al., 2006)
applications in other domains. For example, the exact loca-
tion and time of a measured sensor value is less important
than the aggregate value over a period of time or the trend or
change for a community as a whole.
This article is a significantly extended version of a pre-
vious conference work (Clarke & Steele, 2014). In particular
this article differs in that it analyzes these novel smartphone-
based public health information systems as a generic new
type of system, describes the results from building a signifi-
cant prototype system and carries out a substantially more
detailed privacy and anonymity analysis. We describe a class
of smartphone-based information systems for anonymized
public health data capture and intervention. Interventions
(Klasnja & Pratt, 2012) in this work are in the form of
informational messages sent to an individual’s smartphone,
intended to create a health-related behavioral change, and
are a key component of future Health Participatory Sensing
Networks (HPSNs). In particular, as we later describe, a
significant new capability enabled by these systems is that a
targeted public health intervention can be distributed, per-
formed, and evaluated without the need for the identifying
details of an individual to ever leave their mobile device.
The introduced system eschews the need for a fully trusted
central server, which might prove impractical or itself a
significant privacy risk on population-scale applications,
instead adopting an architecture that has a central aggregation
server in communication with the end-user mobile devices,
only via an intervening anonymizing layer, and uses
local processing on each mobile device to ensure nonre-
identifiability of the user from their submitted sensor data.
Received March 6, 2014; revised May 28, 2014; accepted May 29, 2014
© 2015 ASIS&T
•
Published online in Wiley Online Library
(wileyonlinelibrary.com). DOI: 10.1002/asi.23356
JOURNAL OF THE ASSOCIATION FOR INFORMATION SCIENCE AND TECHNOLOGY, ••(••):••–••, 2015
V C
2015 ASIS&T Published online 2 April 2015 in Wiley Online
Library (wileyonlinelibrary.com). DOI: 10.1002/asi.23356
JOURNAL OF THE ASSOCIATION FOR INFORMATION SCIENCE AND TECHNOLOGY, 66(12):2596–2608, 2015