J Appl Res Intellect Disabil 2016; 1–12 wileyonlinelibrary.com/journal/jar
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Published for the British Institute of Learning Disabilities
© 2016 John Wiley & Sons Ltd
Accepted: 11 November 2016
DOI: 10.1111/jar.12323
SPECIAL ISSUE
Child protecion services and parents with intellectual and
developmental disabiliies
Traci LaLiberte | Krisine Piescher | Nicole Mickelson | Mi Hwa Lee
Department of Social Work, University of
Minnesota Twin Ciies, Saint Paul, MN, USA
Correspondence
Traci LaLiberte, Department of Social Work,
University of Minnesota Twin Ciies, Saint
Paul, MN, USA.
Email: lali0017@umn.edu
Background: Informaion about parents with intellectual and developmental disabiliies
(IDD) in the child protecion system (CPS) coninues to evolve. This study examined
characterisics, experiences and representaion of parents with IDD across three CPS
decision points, as compared to parents with other disabiliies and parents without
disabiliies in the United States.
Methods: The sample consisted of 303,039 individuals: 2,081 were individuals
ideniied as parents in a CPS invesigaion; 1,101 had children in out-of-home care
(OHC); and 308 experienced terminaion of parental rights (TPR). Descripive staisics,
chi-square analysis, disparity indices and logisic regression were employed.
Results: Parents with IDD were signiicantly more likely than parents without
disabiliies (but not signiicantly more likely than parents with other types of disabiliies)
to experience disproporionately representaion.
Conclusions: Parents with IDD are generally over-represented within CPS; however,
this representaion is dependent upon the comparison group uilized and other risk
factors. CPS system-level changes are necessary.
KEYWORDS
child protecion, disparity, intellectual and developmental disabiliies, out-of-home care, parental
disability, terminaion of parental rights
1 | INTRODUCTION
People with intellectual and developmental disabiliies (IDD) have
experienced a long history of discriminaion and prejudice, especially
as it pertains to their ability to live full, independent lives, create fam-
ilies and parent their children. Evidence of past societal aitudes,
acions and policies related to parening with IDD (e.g., eugenics, invol-
untary sterilizaion and insituionalizaion) clearly demonstrates this
proliic prejudice and discriminaion in the United States (USA) as well
as in the United Kingdom (UK) and Australia (Booth & Booth, 1993;
Diekema, 2003; Macklin & Gaylin, 1981; Prouty, Smith, & Lakin, 2005;
Ricks & Dziegielewski, 2000). Broad-based acions to prevent people
with IDD from having children have been signiicantly reduced (Aunos
& Feldman, 2002; Maraino, 1990; Prouty et al., 2005), but negaive
societal aitudes regarding parening with IDD coninue with respect
to maltreatment and meeing developmental milestones (Ackerson,
2003; Burgen, 2007; Lighfoot, LaLiberte, & Hill, 2010; McConnell &
Llewellyn, 2002; Watkins, 1995). Negaive stereotypes have not been
limited to that of general society. Social service workers and other
professionals charged with supporing individuals in living their fullest
self-directed lives expressed signiicant concerns about people with
IDD marrying and raising children (Aunos & Feldman, 2002). However,
professionals in these roles have also asserted that parents with dis-
abiliies can successfully parent when appropriate supports and ser-
vices can be put in place (Wade, Llewellyn, & Mathews, 2008).
In addiion to discriminaion and prejudice, parents with IDD
face addiional challenges in parening. Parents with IDD oten ind
themselves in poverty due to employment in low-paying jobs, under-
employment or unemployment (Booth & Booth, 1993; McConnell
& Llewellyn, 2002; Tymchuk, 2001). Life challenges for parents
with IDD are also compounded by co-occurring disabiliies, such as
mental illness (Chaplin, Gilvarry, & Tsakanikos, 2011; Llewellyn &
Hindmarsh, 2015; Llewellyn, McConnell, & Ferronato, 2003) and/
or substance abuse (Chapman & Wu, 2012; van Duijvenbode et al.,