Toward Wellness: Women Seeking Health Information
Dorothy Warner
Rider University Libraries, 2083 Lawrenceville Road, Lawrenceville, NJ 08648-3099. E-mail: warner@rider.edu
J. Drew Procaccino
Rider University, 2083 Lawrenceville Road, Lawrenceville, NJ 08648-3099. E-mail: jdproc@aol.com
As health information seekers pursue their “right to
know” when investigating medical options, the question
of reliable health information resources becomes para-
mount. Previous research has not addressed widely the
connection between women as the health information
seeker and quality health information, nor has women’s
awareness of specific health and medical resources
been adequately evaluated. A study with a convenience
sample of 119 women assessed the process of seeking
health information (women’s health information needs,
the search strategies they employed for filling the infor-
mation need, and the use of the health information
found), and their awareness of specific health and med-
ical information resources. Our survey instrument was
based on Kuhlthau’s Information Search Process (ISP)
model. Results appeared to address the uncertainty
stage of the ISP model, as there were conflicting re-
sponses regarding the facility of locating information,
the usefulness of the information found, and whether or
not the subjects’ health questions were answered. The
study also identified a low awareness by our respon-
dents of specific health and medical information re-
sources. There is an opportunity for health information
providers to play a role in mediating at this uncertainty
stage to connect health information seekers with reli-
able information.
Introduction
As the medical community has encouraged more patient
involvement in and responsibility for medical decision-
making, and healthcare consumers pursue their “right to
know” their medical options, the question of reliable health
information resources becomes paramount. “Patient em-
powerment has fostered the development of shared deci-
sion-making for people facing healthcare or treatment
choices. Autonomous and self-determined adults want to
make their own choices, and the widespread availability of
information on the Internet has made learning the options
easier” (Klein-Fedyshin, 2002, p. 44; see also, Calabretta,
2002; Stavri, 2001; Thomas, 1993). However, health infor-
mation may be more accessible to some, but are health
information seekers, women in particular, aware of quality
health information resources?
This study focuses on women because “there is a general
impression that women use physician services more often
than men; in particular, women are thought to be more
attuned to care of their health and more likely to seek
preventive services” (Muller, 1990, p. 40). National data
supports the higher rate of visits by women to their physi-
cians (Muller, 1990, p. 40). Stern (1986) notes “women
have guarded the health of their families since the dawn of
human time . . . using special knowledge received from
older women” (p. xi). Others who note women as “gate-
keepers” for health include Navarro and Wilkins (2001),
Calabretta (2002), Apple (1990), Whelehan et al. (1988),
and Leavitt (1984). What constitutes the health information
seeking behavior of women? We identify and investigate
the following aspects of the health information seeking
process: determining the health information need, determin-
ing the search strategies employed for filling the health
information need, and the use of the health information once
located. We question whether the information seeking pro-
cess of female health seekers is being considered in attempts
to connect them with quality health information. Without
reliable information, the health information-seeker cannot
proceed effectively in medical decision-making.
These questions form the basis of identifying a type of
everyday life information seeking (Savolainen, 1995) in-
tended to result in a “mastery of life” that comes about
through the development of a “sense of coherence.” Savol-
ainen (1995, p. 264) summarizes the work of Antonovsky,
who defined the concept of sense of coherence as including
the qualities of “comprehensibility, manageability, and
meaningfulness of stimuli.” This can be understood within
the health information seeking process as an “attempt to
gain control over health-related events” (Johnson & Meis-
chke, 1991, p. 748) through a process designed to meet the
individual’s ability to “cope cognitively with change” (p.
748). That process may include several channels, formal,
Accepted December 3, 2003
© 2004 Wiley Periodicals, Inc. ● Published online 24 February 2004 in
Wiley InterScience (www.interscience.wiley.com). DOI: 10.1002/asi.20016
JOURNAL OF THE AMERICAN SOCIETY FOR INFORMATION SCIENCE AND TECHNOLOGY, 55(8):709 –730, 2004