ORIGINAL RESEARCH
Adolescents developing life skills for managing type 1 diabetes: a
qualitative, realistic evaluation of a guided self-determination-youth
intervention
Gitte R. Husted, Bente Appel Esbensen, Eva Hommel, Birger Thorsteinsson & Vibeke Zoffmann
Accepted for publication 8 March 2014
Correspondence to G.R. Husted:
e-mail: gitte.husted@regionh.dk
Gitte R. Husted MScN RN
PhD Student
The Paediatric Department, Nordsjællands
Hospital Hillerød, University of
Copenhagen, Denmark
Bente Appel Esbensen MScN DMSc RN
Research Manager Associate Professor
Research Unit of Nursing and Health
Science, Copenhagen University Hospital,
Glostrup, Denmark
and Department of Public Health Faculty of
Health and Medical Sciences, University of
Copenhagen, Denmark
Eva Hommel MD DMSc
Consultant
Steno Diabetes Center, Gentofte, Denmark
Birger Thorsteinsson MD DMSc
Professor
Department of Cardiology, Nephrology and
Endocrinology, Nordsjællands Hospital
Hillerød, University of Copenhagen,
Denmark
and Department of Clinical Medicine,
Faculty of Health and Medical Sciences,
University of Copenhagen, Denmark
Vibeke Zoffmann MPH PhD RN
Associate Professor
Steno Diabetes Center, Gentofte,
Denmarkand NKLMS, Oslo University
Hospital, Norway
HUSTED G.R., ESBENSEN B.A., HOMMEL E., THORSTEINSSON B. &
ZOFFMANN V. (2014) Adolescents developing life skills for managing type 1
diabetes: a qualitative, realistic evaluation of a guided self-determination-youth
intervention. Journal of Advanced Nursing 00(0), 000–000. doi: 10.1111/jan.12413
Abstract
Aim. To explore and illustrate how the Guided Self-Determination-Youth method
influences the development of life skills in adolescents with type 1 diabetes
supported by their parents and healthcare providers.
Background. Evidence-based methods that accomplish constructive cooperation
between adolescents with poorly controlled type 1 diabetes, their parents and
healthcare providers are needed. We adjusted an adult life skills intervention
comprising reflection sheets and advanced communication for use by adolescent-
parent-professional triads in outpatient visits.
Design. A qualitative realistic evaluation design comprising eight context-mechanism-
outcome configurations directed the analysis of the Guided Self-Determination-
Youth’s influence on adolescent-parent-professional triads to evaluate what worked
for whom, how and in what circumstances. Thirteen adolescents aged 13–18 years
diagnosed with type 1 diabetes for ≥1 year and having poor glycaemic control
participated together with 17 parents and eight healthcare providers. Data were
collected from December 2009–March 2012 and consisted of digitally recorded
outpatient Guide Self-Determination-Youth visits collected during the intervention
period (11Á5–24Á5 months) and semi-structured interviews at 6-month follow-up.
Findings. Emerging life skills in adolescents were identified as: (1) developing new
relatedness with healthcare providers and parents; (2) becoming decision makers in
their own lives with diabetes; and (3) growing personally. Reflection sheets
combined with healthcare providers’ advanced communication were central to
promoting mutual problem-solving.
Conclusion. A life skills approach turned outpatient visits into person-specific visits
with improved cooperation patterns in the triads. Combining reflection sheets and
advanced communication skills supported adolescents in beginning a process of
developing life skills.
Keywords: adolescents, autonomy-supportive intervention, decision-making, nurs-
ing, outpatient clinic, type 1 diabetes
© 2014 John Wiley & Sons Ltd 1