49 T.K. Woodruff et al. (eds.), Oncofertility Communication: Sharing Information
and Building Relationships across Disciplines, DOI 10.1007/978-1-4614-8235-2_4,
© Springer Science+Business Media New York 2014
Introduction
A cancer diagnosis is a life-altering event and since cancer treatment can impair
future fertility capacity, cancer can also change a patient’s parenting plans and family
goals. There has been increased attention to the issue of cancer-related fertility
impairment in recent years [1, 2], including the establishment of best practice
guidelines from ASCO (American Society of Clinical Oncology) [3], ASRM
(American Society for Reproductive Medicine) [4], and AAP (American Academy
of Pediatrics) [5], as well as advocacy groups aimed at both patients and doctors to
educate on the issue of fertility preservation (including Fertile Hope and the
Oncofertility Consortium). There has even been increased coverage in entertainment
and popular media on post-cancer parenthood, including notable high-profile cases
such as Lance Armstrong. Despite these strides, there is continued concern that cancer
patients are not always informed about potential impairment or available fertility
preservation options that can help to safeguard their future fertility. Earlier studies
in the growing field of oncofertility have indicated that many patients, particularly
adolescent and pediatric patients [6], do not recall discussing fertility or fertility pres-
ervation options prior to beginning chemotherapy and/or radiation [1]. As a result,
researchers are examining the barriers to the exchange of fertility-related discussions
between patients and doctors (particularly oncologists) prior to potentially damaging
cancer treatment (see [1] for review).
The exchange of fertility-related information between patients and oncologists
becomes even more complicated when the patient is an adolescent, and parents
(or other legal guardians) are the legal decision makers. Many ethical, legal, and
Chapter 4
Cancer-Related Infertility and Young Women:
Strategies for Discussing Fertility Preservation
Karrie Ann Snyder and Alexandra Tate
K.A. Snyder, B.A., M.A., Ph.D. (*)
Department of Sociology, Northwestern University, Evanston, IL, USA
e-mail: karrie-snyder@northwestern.edu
A. Tate, B.A.
Department of Sociology, University of California, Los Angeles, Los Angeles, CA, USA