Complex and dynamic times of being chronically ill: Beyond disease
trajectories of patients with ulcerative colitis
Sergei Shubin
a, *
, Frances Rapport
b
, Anne Seagrove
c
a
Geography, College of Science, Swansea University, Singleton Park, Swansea, SA2 8PP, UK
b
Centre for Healthcare Resilience & Implementation Science, Australian Institute of Health Innovation, Macquarie University, 75 Talavera Road, North Ryde,
NSW, 2113, Australia
c
College of Medicine, Swansea University, Singleton Park, Swansea, SA2 8PP, UK
article info
Article history:
Received 28 July 2015
Received in revised form
6 October 2015
Accepted 27 October 2015
Available online 31 October 2015
Keywords:
United Kingdom
Time
Chronic illness
Temporality
Heidegger
Ulcerative colitis
abstract
This article contributes to health research literature by problematizing the linear, sequential and intel-
ligible understanding of time in the studies of illness. Drawing on the work of Martin Heidegger, it at-
tempts to overcome the problem of considering the time of illness as either a framework controlling
patients' experiences or a mind-dependent feature of their lives. The paper offers a conceptual analysis of
the stories of ulcerative colitis patients from a recent clinical trial to present temporalities of illness as
both objective and subjective, relational and dynamic. We attend to a combination of temporalities
related to the ambiguous unfolding of illness and patients' relationships with such an unpredictable
world of changing bodies, medical practices and temporal norms. Furthermore, our analysis reveals
openness of times and considers ulcerative colitis patients as constantly evolving beings, with multiple
possibilities brought about by illness. The paper highlights co-existence of times and considers patients'
lives as incorporating a multiplicity of futures, presents and pasts. It concludes with conceptual obser-
vations about the consequences of developing complex approaches to illness in health research, which
can better highlight the situatedness of patients and their multi-dimensional temporal foundations.
© 2015 Elsevier Ltd. All rights reserved.
1. Introduction
This paper presents a new perspective on the concept of ‘time’ in
health and illness. It aims to address a number of important limi-
tations in the interpretation of time that the current health services
literature reveals in its presentation of patients' health concerns,
and their views on healthcare professionals' practices in the sup-
portive role. In order to achieve this, the paper uses interview data
collected during a recent clinical trial (CONSTRUCT) with ulcerative
colitis patients discussing their health and illness stories, in order to
respond to the following limitations in the health and illness
literature.
Firstly, researchers often present patient's life trajectories, or
changes to their health and wellbeing over the course of an illness
linearly, as a succession of instants along an imaginary line (which
we shall call in this paper a patient's ‘career’, Murray et al., 2005;
Robinson, 1990). In so doing they tend to focus on static medical
outcomes such as functioning and treatment adherence, and on
temporal sequences of interventions that fail to express the very
movement of time (Gergel, 2013). Within such flat temporalities,
priority is often accorded to synchronising individuals' activities in
a healthcare context with externally imposed temporal frameworks
(such as a patient's history taking, medical progression, or the
“controllable time” of consultation reporting, cf. Richardson et al.,
2008) to the exclusion of a patient's surprisingly divergent expe-
riences, as described by them. As a result, temporal experience is
often explored within a binary framework that is pre-defined by
the healthcare professional e such as temporary or permanent
illness, available or ideal treatment options, “reclaimed” or
“consumed” time (Seymour, 2002). These are perceived to be
logically distinct, clearly separate dimensions, that relate to a pa-
tient's past, present and future whereas we would argue for a more
nuanced, overlapping, and less distinct approach to understanding
the complex dimensions of health and illness.
Secondly, the existing literature often presents time as an entity
both consciously intelligible and easily manipulated by patients
and healthcare professionals, in order to achieve specific goals such
as ‘planned’ drug treatments (Grant et al., 2003; Hjelmblink and
* Corresponding author.
E-mail address: s.v.shubin@swansea.ac.uk (S. Shubin).
Contents lists available at ScienceDirect
Social Science & Medicine
journal homepage: www.elsevier.com/locate/socscimed
http://dx.doi.org/10.1016/j.socscimed.2015.10.065
0277-9536/© 2015 Elsevier Ltd. All rights reserved.
Social Science & Medicine 147 (2015) 105e112