82 Journal of Pediatric Ethics Winter 2019
ABSTRACT
The primary purpose of this article is to critically examine the
state of the medical ethics literature and discourse around the
concept of futility in pediatric intensive or critical care. The second-
ary purpose is to identify the conceptualization of futility by differ-
ent authors, the tensions that exist in the discourse around futility,
and the variables that exist in cases when futility is thought to
occur. Identification of concepts, tensions, and variables will help
to identify the social structure around issues of futility in pediatric
intensive care. Seventeen articles were included for summative
content analysis. Four conceptions of futility were found: unclear,
against medical standards, a subjective value judgment, and not a
unilateral conception. The major tensions that emerged, in order,
were that futility is based in relationships and responsibility, is goal
oriented, and based in beliefs and values. The most reported vari-
able was conflict between parents and careproviders, followed by
mechanical ventilation, neurologic devastation, terminal illness, un-
certainty, and aggressive treatment. Given that the main variable
found was conflict, the main tension was relational, and no con-
sensus on futility was found, it appears that unless there is inves-
tigation into the mechanisms of conflict and relational tensions
A Critical Analysis of Futility Discourse
in Pediatric Critical Care
Ian Wolfe
Ian Wolfe, RN, CCRN, is a Charge Nurse and a Staff Nurse at
Children’s Hospital of Minnesota, is a PhD Candidate in the Nurs-
ing Department at the University of Minnesota, and is an MA Stu-
dent in the Center for Bioethics at the University of Minnesota in
Minneapolis, Minnesota. wolfe370@umn.edu
©2019 by Journal of Pediatric Ethics. All rights reserved.
around futility, this phenomenon will continue to appear in the
medical ethics literature.
INTRODUCTION
This article is a summary of a critical literature
review performed as a preliminary written exam for
a doctoral dissertation. The purpose of the review
was to analyze the medical ethics literature that ex-
ists on futility in pediatric intensive care. The aim
was to identify the mechanisms, relations, objects,
and structures that must be present for cases of fu-
tility, or disputes around futility, to come into be-
ing. The review specifically looked at the medical
ethics literature in an attempt to identify themes in
the conceptualization of futility and the roles in-
volved in and around futility, and to isolate the struc-
tures around futility in pediatric intensive care.
There is a need to identify the structures around
cases of futility to understand why they happen. In
this case, structure refers to and encompasses the
systems, components, relationships, and processes
that surround and affect a phenomenon. Andrew
Sayer, a social scientist working in realist philoso-
phy, conceptualized structure as “a set of internally
related objects or practices.”
1
Geoff Easton noted that
related objects or practices can include departments,
people, processes, and/or resources.
2
This is simi-
larly conceived by systems theorists who view a
system as “a perceived whole,” the elements of