https://doi.org/10.1177/1403494817717557
© Author(s) 2017
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DOI: 10.1177/1403494817717557
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Scandinavian Journal of Public Health, 1–7
Introduction
Although non-communicable diseases (NCDs) have
become the global leading cause of death, infectious
diseases remain a serious problem, especially in devel-
oping countries [1]. Indonesia is experiencing a double
burden of diseases with both infectious diseases and
NCDs, and data are urgently needed to monitor the
pattern of health conditions in this region to provide
evidence for interventions and to measure their effects.
Similar to other developing countries, Indonesia
lacks comprehensive population-wide demographic
and health data, especially longitudinal data, which
measure individual characteristics and link them over
Designing and collecting data for a longitudinal study: the Sleman
Health and Demographic Surveillance System (HDSS)
FATWA S.T. DEWI
1,2
, IFTA CHOIRIYYAH
1,3
, CITRA INDRIYANI
1,3
, ABDUL WAHAB
1,3
,
LUTFAN LAZUARDI
1,4
, AGUNG NUGROHO
1
, SUSETYOWATI SUSETYOWATI
1,5
,
ROSALIA K. HARISAPUTRA
1,3
, RISALIA SANTI
1
, SEPTI K. LESTARI
1,6
, NAWI NG
6
,
MOHAMMAD HAKIMI
1,3
, HARI K. JOSEF
1,7
& ADI UTARINI
1,4
1
Sleman HDSS, Universitas Gadjah Mada, Yogyakarta, Indonesia,
2
Department of Health Behaviour, Environment
and Social Medicine, Universitas Gadjah Mada, Yogyakarta, Indonesia,
3
Department of Biostatistics Epidemiology and
Population Health, Universitas Gadjah Mada, Yogyakarta, Indonesia,
4
Department of Health Policy and Management,
Universitas Gadjah Mada, Yogyakarta, Indonesia,
5
Department of Nutrition, Universitas Gadjah Mada, Yogyakarta,
Indonesia,
6
Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden, and
7
Department of
Community and Family Medicine, Universitas Gadjah Mada, Yogyakarta, Indonesia
Abstract
Background: This paper describes the methodological considerations of developing an urban Health and Demographic
Surveillance System (HDSS), in the Sleman District of Yogyakarta, Indonesia. Methods: 1) The Sleman District was
selected because it is mostly an urban area. 2) The minimum sample size was calculated to measure infant mortality as
the key variable and resulted in a sample of 4942 households. A two-stage cluster sampling procedure with probability
proportionate to size was applied; first, 216 Censuses Blocks (CBs) were selected, and second, 25 households in each CB
were selected. 3) A baseline survey was started in 2015, and collected data on demographic and economic characteristics
and verbal autopsy (VA); the 2nd cycle collected updated demographic data, VA, type of morbidity (communicable and
non-communicable diseases, disability and injury) and health access. 4) The data were collected at a home visit through a
Computer-Assisted Personal Interview (CAPI) on a tablet device, and the data were transferred to the server through the
Internet. 5) The quality control consisted of spot-checks of 5% of interviews to control for adherence to the protocol, re-
checks to ensure the validity of the interview, and computer-based data cleaning. 6) A utilization system was designed for
policy-makers (government) and researchers. Results: In total, 5147 households participated in the baseline assessment in
2015, and 4996 households participated in the second cycle in 2016 (97.0% response rate). Conclusions: Development
of an urban HDSS is possible and is beneficial in providing data complementary to the existing demographic
and health information system at local, national and global levels.
Key Words: Sleman HDSS, surveillance, longitudinal study, urban area, feld laboratory, design paper
Correspondence: Fatwa S.T. Dewi, Department of Health Behaviour, Environment and Social Medicine, IKM Building 3
rd
floor, Farmako Street, North
Sekip, Faculty of Medicine, Universitas Gadjah Mada, Yogyakarta, 55281, Indonesia. E-mail: fatwasari@ugm.ac.id
Date received 31 March 2017; reviewed 27 May 2017; accepted 31 May 2017
717557SJP 0 0 10.1177/1403494817717557F.S.T. Dewi et al.Designing urban HDSS
research-article 2017
STUDY DESIGN ARTICLE