85 VOL. 78, NO. 1, SPRING 2019
Human Organization, Vol. 78, No. 1, 2019
Copyright © 2019 by the Society for Applied Anthropology
0018-7259/19/010085-12
M. Amalia Pesantes is an Associate Researcher at the Centre of Excel-
lence in Chronic Conditions (CRONICAS) at the Universidad Peruana
Cayetano Heredia in Lima, Peru. Anne Tetens is a Master’s student in
the Department of Anthropology at the University of Copenhaguen.
They share frst author positions in this manuscript. Adela Del Valle is
an Education Research Analyst and Evaluator at RTI International, and
J. Jaime Miranda is the Director of the CRONICAS at the Universidad
Peruana Cayetano Heredia in Lima, Peru. This study was supported
by the Medical Research Council (United Kingdom) [MR/M007405/1].
“It is Not Easy Living with This Illness”:
A Syndemic Approach to Medication Adherence and
Lifestyle Change among Low-income Diabetes
Patients in Lima, Peru
M. Amalia Pesantes, Anne Tetens, Adela Del Valle, and J. Jaime Miranda
This study analyzes the experiences of low-income people living with type 2 diabetes in Lima, Peru. We use a syndemic approach
to describe and discuss their challenges in following physicians’ recommendations around medication adherence and dietary
changes. We use the concept of “burden of treatment” to analyze patients’ stories and to understand the complexity of medication
adherence and dietary changes in a middle-income country where the health system is still unprepared to provide chronic
care. Analysis demonstrates that emotional, socioeconomic, and structural components play a role in patients’ capabilities for
following the prescribed recommendations. We show that patient’s illness experiences are intimately linked to the capacity of
the local health system to attend to their needs but are not always acknowledged when promoting self-management behaviors.
Our study shows the relevance of a syndemics approach for understanding the interaction between individual and structural
factors to make suggestions for improving the management of diabetes and the overall experience of chronicity.
Key words: diabetes, Peru, chronic disease, adherence, syndemics
Introduction
M
ost low- and middle-income countries (LMICs) are
experiencing a change in the type of diseases that
affect their populations. While formerly they were
predominantly affected by communicable diseases (CDs),
they are currently experiencing an overwhelming increase in
the number of people affected by non-communicable diseases
(NCDs), a change that especially affects the poor (Atun and
et al. 2013; Mendenhall and Weaver 2014; Samb and et al.
2010). The WHO (2014) reports that in 2012, NCDs were
responsible for 68 percent of the world’s 56 million deaths,
and 75 percent of these occurred in LMICs. Overall, health
care systems have somewhat successfully addressed CDs,
and because of this, among many other contributing factors,
people are now living longer—however, increasingly so with
NCDs (Atun and et al. 2013). In other words, whereas people
formerly survived diseases, they are now living with diseases,
which translates into a change in the profle of mortality
patterns, a change known as an “epidemiological transition”
(Mendoza and Miranda 2017; Omran 1971). This ongoing
transition in many LMICs towards chronicity brings with it
a new understanding of illness as a burden on populations
(Wahlberg and Rose 2015), entailing illness and treatment
burdens felt both on an individual patient-level as well as
on a national health care-level. Patients’ experiences with
their illnesses are intimately linked to the capacity of the lo-
cal health system to attend to their needs but are not always
acknowledged when promoting self-management behaviors
among those affected by chronic conditions.
As formerly curable diseases have changed to incurable
illnesses, patient-care is increasingly dependent on routine
management by both physicians and patients themselves.
Many NCDs, a group that brings together cardiovascular,
diabetes, cancer, and chronic respiratory diseases, share
common risk factors, such as unhealthy diet and physical
inactivity (WHO 2017). For the patient living with a chronic
illness, adherence to medications and lifestyle change is
central for their well-being. Adherence, from a strictly clini-
cal perspective, is defned as the extent to which a persons’
behavior (medication-taking and lifestyle practices) coincides
with medical or health advice (McNabb 1997). Lifestyle
is defned as long-term patterns of behavior in contrast to
singular, isolated behaviors (Bruhn 1998), and the lifestyle