JHR CRITICAL RESEARCH AND PERSPECTIVES
Published online 15 Nov 2019 at jhrehab.org 1
© Emory University; authors retain copyright for their original articles
Finding Help: Exploring the Accounts of
Persons With Disabilities in Western
Zambia to Improve Their Situation
By Shaun R. Cleaver, PT, PhD, Stephanie Nixon, PT, PhD, Virgina Bond, PhD,
Lilian Magalhães, OT, PhD, Helene J. Polatajko, OT, PhD
Abstract
Background: Strategies proposed to improve the
situation of persons with disabilities in the global South
are not always developed in consideration of local
contexts.
Purpose: To explore and develop strategies to
improve the situation of persons with disabilities in one
context in the global South.
Method: We recruited two groups of persons with
disabilities in Western Zambia. Eighty-one disability-
group members participated in focus-group
discussions and individual interviews, with a North
American rehabilitation professional, in which they
discussed life with a disability and what should be done
to improve their situation. The transcribed audio-
recordings of the focus-group discussions and
interviews were analyzed thematically.
Results: The accounts of ways to improve the
situation of persons with disabilities in this context
were framed around a single theme: help (“kutusa” in
Silozi). When expressed by participants in this
research, help refers to gifts or grants of material
resources from those with the means to share but
influenced by the presentation of need by potential
recipients. Help occurs in a relationship of expected
compassion.
Conclusion: Help is very different from formal
strategies that are currently being promoted to improve
the situation of persons with disabilities in the global
South.
Keywords: global South, postcolonial perspective,
poverty, qualitative research, rehabilitation
Introduction
Disability: a global issue best addressed together with those who
experience it.
According to the World Health Organization,
1
there