J Genet Couns. 2020;00:1–12. | 1 wileyonlinelibrary.com/journal/jgc4
1 | INTRODUCTION
Genetic counseling combines biomedical and psychotherapeutic
skills to help patients and their families navigate life events and de-
cisions related to genetic disorders or risk of disease. To assist this
process in a nondirective way, working with the patient's own val-
ues, requires cultural competency to engage with the full breadth of
social diversity.
As rates of open identification as transgender increase, trans-
gender people will be seen more often by genetic counselors.
Received: 3 September 2020
|
Revised: 24 November 2020
|
Accepted: 27 November 2020
DOI: 10.1002/jgc4.1372
SPECIAL ISSUE
Considerations in genetic counseling of transgender patients:
Cultural competencies and altered disease risk profiles
Alexander M. von Vaupel-Klein
1
| Reubs J. Walsh
2,3
This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in
any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.
© 2020 The Authors. Journal of Genetic Counseling published by Wiley Periodicals LLC on behalf of National Society of Genetic Counselors
1
Faculty of Medicine, Utrecht University
Medical Center, Utrecht University, Utrecht,
Netherlands
2
Department of Clinical, Neuro- and
Developmental Psychology, Faculty of
Behavioural and Movement Sciences,
Vrije Universiteit Amsterdam, Amsterdam,
Netherlands
3
Gender Identity Research and Education
Society (GIRES), Ashtead, UK
Correspondence
Reubs J. Walsh, Department of Clinical,
Neuro- and Developmental Psychology,
Faculty of Behavioural and Movement
Sciences, Vrije Universiteit Amsterdam,
Amsterdam, Netherlands.
Email: r.j.walsh@vu.nl
Abstract
Transgender people are a growing population with specific healthcare needs, barriers
to care, and disease risk factors. Cultural competencies for working with transgender
people in healthcare settings are essential to reduce barriers to care and combat
the associated health disparities. Genetic counselors support their patients to un-
derstand and manage medically and personally complex life events and decisions.
A genetic counselor caring for a transgender patient or a patient with a transgender
relative will therefore require specific cultural competencies and medical knowledge
that may not have been covered in their training. Transgender health is also a rela-
tively young field in which new insights may quickly become fundamental. The pre-
sent paper therefore provides an overview of current best practices for culturally
sensitive working with transgender patients, and an introduction to the additional
considerations for assessment of disease risk in transgender people. Guidance on
how to ensure communication with patients and other stakeholders is inclusive and
affirming of transgender identities, is offered. Medical interventions used for gender
transitions are described, and their (potential) effects on cancer and cardiovascular
disease risk are discussed. Furthermore, the effects of sociocultural risk factors such
as minority stress are outlined. In sum, we invite the reader to consider the specific
biological, psychological, and social context of the consultation. Finally, we explore
culturally competent approaches to pedigree charting and physical examinations
with transgender people and provide recommendations for practice.
KEYWORDS
Cultural competence, discrimination, diversity, risk assessment, Transgender,
underrepresented populations