96 British Journal of Occupational Therapy March 2010 73(3)
Research
Introduction
Women with enduring mental illness are poorly represented in the litera-
ture, particularly in occupational therapy writing. There appear to be few
studies focused specifically on women, leaving a gap in knowledge (Wahl
1992). Payne (1995) discussed the difficulties of ‘seeing’ this particular
population, suggesting that the specific needs of individuals and subgroups
become organised around the most dominant group. In the case of people
with enduring mental illness, the most dominant group is perceived to be
men who suffer from schizophrenia, overshadowing women and increasing
their invisibility. Harlene and Bernard (1994, p83) asserted that for these
women ‘invisibility enhances [their] vulnerability’.
Life history offers one way of seeing the whole person: presenting the
woman’s whole life experience, engaging with her life before, during and
after the illness experience. Harlene and Bernard (1994, p85) advocated
that ‘women’s lived experience should be the starting point for all health
efforts’. This study examined the experiences of five women living with
enduring mental illness in their communities. The study is purposely about
women. This is not to say that men are treated differently or better; however,
the focus here is on women.
Literature review
Women with enduring mental illness form a major part of the occupational
therapist’s work in the United Kingdom yet the literature gives little insight
into their specific needs or concerns (Craik 1998).
‘Rip that book up, I’ve changed’: unveiling
the experiences of women living with and
surviving enduring mental illness
Elizabeth Anne McKay
Key words:
Enduring mental illness,
women’s lived experience,
life history.
The lives of women with an enduring mental illness have been little researched
within occupational therapy. This study explored the experiences of five women
living with enduring mental illness in their communities. The women were
interviewed over a 2-year period using the life history method. Data were recorded
and transcribed verbatim. The data set was analysed in two ways. First, from the
narrative analysis, an individual unique narrative of each woman’s life was created.
Secondly, the data were analysed using the constant comparative method.
This paper presents the findings from the constant comparative analysis.
Six themes were identified, which lifted the veil on the experience of living
with and surviving enduring mental illness. Each theme represented a section of
the women’s lived experiences: a specific frame of the bigger picture of their lives.
The themes were present life, life roles, relationships, illness transitions, help and
cultural context.
The findings highlighted the complex life roles and needs of the women over time.
They unveiled how the women became agents in creating a better life for themselves
and others. Practitioners have a role to play in creating meaningful and safe
environments that encourage social inclusion and recovery.
© The College of Occupational Therapists Ltd.
Submitted: 2 July 2009.
Accepted: 14 October 2009.
Correspondence to: Dr Elizabeth McKay,
Head, Department of Occupational Therapy,
University of Limerick, Limerick, Ireland.
Email: elizabeth.mckay@ul.ie
Reference: McKay EA (2010) ‘Rip that book up,
I’ve changed’: unveiling the experiences of
women living with and surviving enduring
mental illness. British Journal of Occupational
Therapy, 73(3), 96-105.
DOI: 10.4276/030802210X12682330090370