Health Policy 76 (2006) 156–168
The snakes and ladders of user involvement:
Moving beyond Arnstein
Jonathan Quetzal Tritter
a,*
, Alison McCallum
b
a
Institute of Governance and Public Management, Warwick Business School, Coventry CV4 7AL, UK
b
National Research and Development Centre for Welfare and Health (STAKES), PL 220, 00531 Helsinki, Finland
Abstract
For 35 years, Arnstein’s ladder of citizen participation has been a touchstone for policy makers and practitioners promoting user
involvement. This article critically assesses Arnstein’s writing in relation to user involvement in health drawing on evidence from
the United Kingdom, the Netherlands, Finland, Sweden and Canada. Arnstein’s model, however, by solely emphasizing power,
limits effective responses to the challenge of involving users in services and undermines the potential of the user involvement
process. Such an emphasis on power assumes that it has a common basis for users, providers and policymakers and ignores
the existence of different relevant forms of knowledge and expertise. It also fails to recognise that for some users, participation
itself may be a goal. We propose a new model to replace the static image of a ladder and argue that for user involvement to
improve health services it must acknowledge the value of the process and the diversity of knowledge and experience of both
health professionals and lay people.
© 2005 Elsevier Ireland Ltd. All rights reserved.
Keywords: User involvement; Patient participation; Patient empowerment; Citizen engagement; Expert patient; Health service reform
1. Introduction
Recent health service reforms in Western coun-
tries emphasise public and patient involvement [1,2].
Increasing participation of users in decisions around
treatment, service development, and evaluation has
been central to this process. The consequences are
becoming clear as relationships between the state and
citizens and between the public, patients and organi-
sations within the healthcare system are redrawn. This
*
Corresponding author. Tel.: +44 2476528217.
E-mail address: j.tritter@warwick.ac.uk (J.Q. Tritter).
shift in health policy has generated significant debate
in both Government and the media. The key document
that continues to shape the theoretical framework for
user involvement is Arnstein’s “A ladder of Citizen Par-
ticipation” published in 1969 [3]. Despite its important
in shaping thinking this model continues to be applied
uncritically, despite thirty-five years of progress in our
understanding of the factors that drive engagement.
In this article, we explore the relevance of Arn-
stein’s typology of user involvement to current devel-
opments in healthcare, particularly within the English
National Health Service (NHS), and draw on com-
parisons from the Nordic countries, the Netherlands
0168-8510/$ – see front matter © 2005 Elsevier Ireland Ltd. All rights reserved.
doi:10.1016/j.healthpol.2005.05.008